Wednesday, May 02, 2007

My Friend Tracy Wrote This

What follows is a post written by a friend on a different board, I think that I have never heard this disease more eliquently stated than this and how to handle us. The wisdom that follows is not mine, I entirely give Tracey full credit and hope she does not mind my usage of it.

This has been my mission of education and very well may be my last post. Read, learn and listen to her, she suffers from this rotten mind robbing disease herself.

On 5/1/07, YoungHope wrote:
> There are ALL kinds of books that have been written clinically and
> scientifically from professionals of all walks of life about
> Alzheimer's Disease. These books profoundly state what the symptoms
> are? How old you HAVE to be to be diagnosed. Books that describe the
> different stages. Books that tell about the different medications
> that are available to treat the symptoms of the disease. These books
> also tell us how we should treat our loved ones with
> Alzheimer's/dementia, how we should take care of them, what we
> should do, what we shouldn't do. The books also tell us how we
> should feed them, what we should feed them, how we should dress them
> and keep them potty trained, what type of a routine they need to be
> on, how to keep them awake during the daytime, how to make them
> sleep at night. These books even tell us how to keep your loved one
> happy and active, when to get your POA and Guardianship papers drawn
> up. These books give all of these answers and more but these books
> do not tell HOW OUR LOVED ONES WANT TO BE TREATED only what they
> think should be. What they are forgetting is that one day they could
> be this person with Alzheimer's Disease and then would they want all
> of these demands put upon them? Probably not.
> The answers that are not in the book are the important things such
> as, if we are in the final stages and do not want to eat, do not
> force feed us. Don't grind our meat up to look like something that
> the cat just spit up. Would you want it? probably not.
> Don't force us take our clothes off and take a shower, but be
> patient and treat us with dignity and respect. Help us to bathe from
> our chair, help us brush our teeth or our gums and to put on clean
> clothes, but please don't scold us for a fear of the unknown.
> Don't force us to get up in the morning, help us turn from one side
> to another to keep our skin healthy. Open the curtains to let the
> sunshine in, read us a story or just sit and talk with us. Remember,
> we are still human.
> Don't force us to go places that we no longer remember. Show us a
> picture and tell us about this long forgotten place and maybe, just
> maybe, we will decide on our own to go with you, but if we don't,
> don't be angry, remember that you were that way many years ago.
> Don't force us to go to bed, tell us that it is time. Help us change
> into our night clothes, dim the lights, turn some music on from our
> day years ago, soft and low and sit near us, let us know once again
> that we are not alone.
> Encourage us to take our medicine. There will come a time that no
> matter what we take, the medicine will no longer work and the
> disease will have won its battle with us. Don't yell at us or curse
> at us, remember we have fought long and hard, now we just need to
> rest at our own pace not at the pace of medical technology.
> These are some of the answers that you won't find in a book but only
> from the eyes and heart of a person with dementia.
> Tracy
Reposted here by Joe.
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