This blog is for those who suffer from Alzheimer's Disease,
FTD and forms of dementia, caregivers, friends and medical professionals that want to share their feelings, thoughts, encouragement, vent and open how they cope with this disease. I was diagnosed in 2004 with the early stages, and quite frankly it scared the beegeebees out of me. 2007 PET SCAN confirmed all.
I know on 12/2018 , said that was my last post. I just have to chime in on thi s virus fear everyone has and the insane hoarding going on. Let me tell you what I learned about the word fear and what it means:
F = FACE
E = EVERYTHING
A = AND
R = RECOVER
That is why this disease of AD and FTD do not scare me or am I afraid of what is happening to me, for i know this will all end. So will the CV end for all of the World, so FACE it and you will be fine, whether you catch it or not. Life goes on and do not be afraid of others.
HELLO, may seem like an unlikely title for my last post but I think not. It is a friendly word of welcome to all those who have visited my site and left comments. To say good bye or farewell just seems to me to be so unkind and non caring. Besides it is also a word that suggests that the one you are greeting is welcomed in friendship. It has been a long 12+ years that i have done this blog and it is just to exhausting now. It has taken me several weeks to get to this post. The stress of our move to Nevada, all the updating to the house and MR. AD and friend FTD have just become to much for my ½ brain cell, which I think (that is a joke) has gone into hiding. My ability to follow conversations has become close to non existence and I am having more and more periods of disappearing while I am still here.
I have outlasted the so called time allowance for these two diseases, whether that is good or bad i do not know. I have met many new people hopefully helped a few understand these diseases from Our Side fo the Fence. I have tried to keep my humor through it all, but that has become difficult also, no more fun seen in it. My memories are leaving both recent and past, days are all mixed up. I have a new week that I designed it is simple called Today. It is non specific, because that is how I have become. My body hurts just about everywhere, I do not see well or hear well, my wife says tat is normal for me. If it was not for her these last 14 years would have been a mess, not to mention the 40 we have been together. Five kids, eight grandchildren later and #9 do any day, it has been a trip.
Last post I told you about a conferrence I was invited to in Italy next year, well I was invited to Paris next year for a conference. My blog has received over 30 different awards, of which I am just in awe of, the most rewarding invite, offer what ever you want to call it just came to be Guest Speaker, yup you read it at a conferrence in Ho Chien Meng, China next year. I say that because The Best Neurological Hospital of China, that is thier name, was the first foreign vistor I had and asked me if the could use my blog for teaching. I was humbled and honored at that request and this latest has blown my toes off, forget the shoes and socks. Of course since I do not travel and have always been extremely unsettled to have my feet in the air (afraid!!!!!!) I do not fly. I may be a bird brain but I have no feathers. But what away to leave this blog with those offers. It has been home for me for a very long time but time has caught up with me and is taking hold faster each day so I must move on to where ever it is I am going. You see the Joe that started this blog is no longer here, he has slowly left and the fire in him that was there is just ambers. But just one last time I say to the so called medical field get your Fucking Heads Out of Your Ass and you just might figure this out, asking to much aren't I?
Well stay well, take care of yourselves and from me and my family to you ad yours have a VERY, VERY MERRRY CHRISTMAS AND THE BEST OF NEW YEARS!
God Bless and Keep You and This Country of Ours!
PS: MY political statement Go Mr. President. To Mr. B. and Mr. S. and all of your socialist friends and gun grabbers that want to ruin our Country, may you all look back over your shoulders and suffer the same fate as Lot's Wife.
My facebook account is now closed. Yesterday I finished unjoing all my communities of google+ and deleted my google+ account as well.
To all those that have requested adding certain resources to my blog recently, I sasy to you thank you, but they will not be added. I will be making one more post after this one and it will be my last. I will explain why then. About a week after that post, I will be saving my blog to a file and then my blog will be deleted fromw the web.
Well finally I have gotten to the post page. Me and my friend Alzheimer's have been going to talk to you for months now, but I get here and well things just go south. Since we moved to Nevada last year I have had a very hard time adjusting to things. I did not think when we made the move that it would affect me like it has. I am finally content where we are. It has taken a lot of brain power, I use that term loosely, to cope with things. I put so much time and effort into getting the move ready and all paperwork in place and finances that by the time we moved I was totally not with me. Then all the improvements we have made and a wedding of my youngest all combined to just fry that ½ a brain cell that I have left. The truth be known I really have not been sure of where I have been mentally this last year. Many times I have forgotten that we moved and things, all of which I have kept to myself. I have tried to remain calm and pleasant and all that BS, but it has not worked out to well. Even though I have not personally posted for some time my blog has still won some additional awards, but they do not mean what they used to. See this is not about awards, it is about my disease and how it affects me, which I am not really sure how to answer any longer. I have gone back to consulling to helpm ==m , the jury is still out on that. I have closed my facebook page, left groups I belonged to, have done much of the same with google+ and others. Not able to keep up with the remains, read posts, comment and the rest they have all become to much to handle.
The heat here is not my friend, but we have central air and I am fine with that. We have been in the 100's since about mid June, it is finally cooling down at night that means that fall is on it's way here and we will be down in the 80's and 70's. We live in the desert area, so this is the type of weather we have. We did go back to southern California on a small trip two or so weeks ago and the humidity there was just to much. I have gotten use to the dry air here and the difference in altitude from about 77 ft above sea level to over 2600 ft above.
I am having more trouble keeping my words correct they get more messed up now when I talk than they used to. It is quite frustrating so many times I just sit and say nothing. My way of dealing with it. I get asked you ok and always yes I am fine, whether I am or not. It is getting harder to hine what is taking place inside this brain of mine.
One thing that really took me back was getting invited to an International meeting with researchers, workers in the field of dementia and Alzheimer's in Europe next year. Boy what a mistake they made they must not really read my blog to see my feelings about the medical profession, but still an honor for someone like me.
I am fading fast so I am going to go for now. Not sure when I will be back. I miss comming here but I just freeze up and go blank on what I want to say. Not even sure I said what I wanted to here. Be careful of the Snake Oil peddelers on the Internet, there are no cures and the causes they come up with really are trully fantasies. No causes 100% confirmed, amazing over 100 years later and they really do not know much more if anything.
Well you take care of yourselves.
God Bless and Keep You and This Country of Ours!