Monday, April 23, 2012

When Is Enough, Enough? NOW!

For a number of years now my friend Ken in the UK has been blogging about LWD, Mary and Jim in Canada about AD, Karen in Israel about AD, Carol and Herb, and a host of others about AD, victims of the disease, Alzheimer's. Including me. But this broad coach that has AD now is ELECTRIFING THE WORLD according to the good old Alz.org. I guess the rest of us are chopped liver, we have no fame and glory. I have expressed by displeasure in the past for the Alz.org and their lack of ability to take the bull by the horns, I am only one person and make no diff to them, but as of today all my advocate ties and other assosiations with them do not exist. I have had enough I no longer choose to lower myself to them. I will continue to write here and tell how life sucks with this disease, how my conversations run a muck and I slowly become whatever. Those that come and read fine, those who don't oh well. Frankly i think my blog has run it's coursse and does not reach out anymore. But it is an outlet for me, and that is all that matttters anylonger to me.
Thank you all for your words about my bird. She was a peachfaced lovebird.  Known like her owner by many names, but she was my friend and I still talk to her, have not been able to move forward, oh well in time my brain cells will.

Take care of yourselves.

God Bless & Keep You & This Country of Ours!
joe

PS i know after this post i will think of things I wanted to say, then forget them.  Before i go, those of you who might remember Yolanda for The Memory Loss Tapes, as of two days ago she was still alive and kicking. I keep check on those in hte HBO special, even though they don't.

3 comments:

Harrison 9 said...

Joe, As a caregiver to my precious Mom, I enjoy reading your very REAL posts. Mom was an incredible storyteller and writer but those parts are gone now. Your ability to write blesses me. I do find my time so limited that I forget to let you know I am out here and listening. Please continue to write for us! We have started Mom on the "unapproved" Coconut Oil supplements and are seeing some interesting improvements...one day she had her old sense of humor back for a bit...delightful! God bless you and yours! Jane and family

NewKidontheBlogg said...

You are never chopped liver to the LORD. You touch more people than you realize. People just don't comment much.

Carol (and Herb)

A.R. said...

I work for the Alzheimer's Association. We work hard to make life easier for persons with dementia and their loved ones. We raise awareness about the disease, which as you know, is a struggle. Celebrities with this disease need more attention because that will bring Alzheimer's to the spotlight, raise awareness, and encourage people to get help where they may have hesitated before. I wish that awareness was there, and that we didn't need to spotlight famous people with dementia. I follow your blog, as many do, without commenting on posts. You're important to many of us, even if we don't often say so.