Friday, December 30, 2011

Strangers in the Midst.

I have done my veyt best to fight this disease with all the mental strenght that I have had. I have allowed it to take its tolll on me physically because my mind was more important and is who anaad what I am. Well itt has marched on and I have not, it is to the point I look at those in my house and wonder who they are. I know I sould know them but I do not. I pretend to be in touch but well Mr. Alzheimer's has taken over and made him serlf at home. I rarely hear from any friends or see them, I hardly hear from any of you anylonger. There once was a time the commentss and emails were difficult to keep up with, now the emptiness of that is setting in. I know everyoe has their proble,s and life to live, but the anger that this disease hels to raise, while not really justified, it happens and and this world of mine has grown smaller, colder, darker and emptier and really not worth being here, I pray and even beg to be taken, but it is in his time. I have nothing more to offer or give and do not know why i am here.
Well i am loooosing my train of thought so take care of yourselves.

God Bless & Keep You & This Country of Ours! (Amd je Rest pf upi as We;;)
joe

18 comments:

Todd Sternisha said...

Hang in there, Joe. Your writing continues to bring insight and information to both people suffering with the disease and those of us trying to help the people who are. Wishing you and Lynn a happy new year.

Jonathan14723 said...

Dear Joe,

I love your writing. I discovered your 'blog' only recently, and will read the older posts.

I will also buy your book if I can.

I work with people who have dementia, and feel great humility in the face of this condition. One thing always impresses me - even where cognitive ability are failing severely, the individual's personality always continues to shine through.

My very best wishes to you,

Jonathan

Anonymous said...

Dear Joe-
Thank you for your blog. Thank you for being so willing to share your journey with us. My father has Alzheimers, and he never spoke about what he was experiencing. I regret to say that we never really discussed it either, as we simply didn't know what to say at the time. My Dad is non-verbal now. Your writings have been my family's link to understanding more about my father's journey. The information has been invaluable and I can not thank you enough. I check your site just about everyday, always hoping there's another post from you. I am a nurse, and the information you have shared has improved my communication with families who are suffering. May no one else suffer in silence, the way I believe my Dad did. You have given much,Joe, and I just want to say "thank you." k

NewKidontheBlogg said...

Joe,
People are busy in December, but I bet the comments and contacts will pick up in January. Meanwhile you certainly are wise to recognize that your heavenly father will raise you up one day and all the suffering and confusing thoughts will be over.
Carol

Inge said...

I read every post you write but I do not always know what to reply. I love your blog because it gives me a little idea of how my father must be experiencing his Alzheimer, so please keep on blogging!

Greetings,

Inge

JUST A MOM said...

Joe know that I think and talk of you often,, I do stop in and check on you almost daily. You have given me something that I always wished I was able to have,, a "looking out from the inside" of this horrible thing called Alzheimer's. I am blessed in more ways then you know just in knowing you my friend. I can tell you I so have not been ready for your coming to this point. We are still here... reading and loving your words. (((HUGS))) keep a smile and keep writing as long as you are able. Happy new year to you and your family...

Anonymous said...

I might not comment but I check your page daily! Thank you for sharing everything please stay strong and stay with us!!!

Anonymous said...

You inspire me, please keep it up. You are always in my thoughts !

Brangane said...

I always read your Blog, my apologises for not always commenting. Please keep blogging, I check your page daily.

Dana Kruckenberg said...

Hello Joe, I think of you often, but with caring for my husband who is going downhill very rapidly, I am not checking blogs as much as I used to, but still writing Today's Project. Thank you for expressing what so many sufferers are feeling. Steve is ambulatory but his utter lostness is now requiring personal needs caregiver help almost all day. He knows us family members but probably couldn't call them by name, and I am advising friends to visit him soon. The neurologist said that Aricept and namenda are pointless mow in late stage, but they seem to help his functioning. Are you still on meds? (You don't have to answer if it's too personal of a question).Praying for you, Joe.

Rotem said...
This comment has been removed by the author.
Rotem said...

Hi Joe,

I am a Visual Communications student from Israel and I have recently discovered your blog due to a project I'm doing on AD. I was touched by The Memory Loss Tapes and thats how I got to you. I love your writing and support you for giving it a fight. I would really like to buy your book. I will try to order it today so if you can, please mail it as fast as you can.

Thank you for writing,
hang in there and stay strong!!

Rotem

Madam Moonchild said...

This post makes me feel incredible sad. I do you read your blog but often times I just don't know what to say. Everything sounds cheesy or half-assed. Your blog is important. Your experience, as painful and messed up as it is is valuable. Hang in there Joe. We are all rooting for you!

June said...

Hi Joe,

Still reading your blog, and sharing it with other families at the Sunrise Asst living place where my Mom is living. You the Man!

Happy New Year!

June

Anonymous said...

We are here with you, even if we don't always comment.
My mom just passed away from Alzheimer's 3 weeks ago. She did so gracefully and peacefully.

Dolores said...

I hope you continue with your blog. You're an inspiration to everyone who follows your blog. I don't respond often, but read and get inspired by your faith and determination.

Anonymous said...

Joe,

I have followed your blog for quite awhile now. I'm impressed with your courage and ability to share so openly with the world. I am inspired by you, and hope that you know that you're making a difference.

Melinda Schindler, TX said...

Joe,

You are an inspiration. You are giving what few people with Alzheimer's can. I take care of my mother in my home. I wish there was a way for me to communicate with my mother and she be aware that it's me. She may not know who I am, but she tells me thank you and she loves me often. She knows I love her. Thank you for your blog. It means a great deal to many. God Bless You and your family.