Sunday, April 03, 2011

Alzheimer's - The Miss Understanding of Many People

What follows is a statement made of Caring.com by a supposed, i use the term very loosely and with distain, 20yr Professional Caregiver.  Persons words just prove what I have said here, we are not understood and we need a voice, and not from the professionals.  My response to this very ill informed ass and Lynn's is there also.  Pleaase understadn that most of the people on Caring.com are really people who care and are trying to undeerstand and get good information not this type of pure crap and idiocracy.
"it's an illness, it's difficult but it's not ugly, horrible, demeaning, cruel.
i know that no-one i ever look after ever could remember my name, but i remember theirs. and i walk beside them. that's what caregiving is. it's not oppositional, it's walking beside who this person actually is now. it's about forgiving them for their illness."
Frena wrote the above. Well maybe if you had the disease Lady, you might just find out how ugly, horrible, deameaning, cruel and damnable it is. See I suffer from it, so do not hand me that load of crap. And i do not need yours or anyone elses forgiveness for me having this disease. Expert you are not, you do not live in this world. I and over 5 million people at present in thsi countyr of orus do.
Joseph
/this is Joe's wife, Lynn, I am surprised that he was very calm in the response to your letter. This is a disease. It is ugly and horrible. Nobody wants to loose their minds and that is what happens with Alzheimer's. I do not know of anybody that has this disease who needs to ask for forgiveness from you or anybody else. The people who have cancer which is a disease don't ask for forgiveness why should the people who have Dementia. Maybe you need to rethink your profession.


Read more: http://www.caring.com/questions/tell-parent-she-has-alzheimers#ixzz1ITq5Jin3



God Bless & Keep You & This Country of Ours!!!
joe

2 comments:

NewKidontheBlogg said...

Absolutely, Lynn and Joe. "Forgiveness" is not the word."Forgiveness" is a word that looks down on someone--almost with pity. She needs to walk in the shoes of someone who has Alzheimer's or who has a loved one with it. I understand when my husband is angry that he can't go to the shooting range. I understand when our friend is angry that he didn't pass the Alzheimer's driving test. I of course don't fully understand, but I want to, I care to. And I don't get mad back. I am hearing your song, "You raise me up." I am raising you up in prayer, Joe and Lynn. Thanks for being so real on this blog.
Carol

Cody said...

Hello Joe,
My name is Cody, I am sincerely lifted and inspired by your story. Just when things seem hopeless i find somebody further down the journey still able to maintain a sense of dignity and quality of life. Thank you for your light in dark time.