Thursday, July 23, 2009

Good Morning

Wanted to say thanks to those of you taht have used the chat link, it has been fun for me. I think when i request it and the icon goes acros the screeen it scares people out, because they leave. I must admit it has woren me out. I am talking with some folks I hope to put a full time live chat room on. My hope is that it will give those who come to might site a chance to exchange ideas of this disease. Mabee it will help some of you caregivers to have others to talk to and help release some of your frustrations. Hell I know we with the disease are a handful. I find as it is progressing that I am less talkative to others, cut them off or just go to my own world and leave them out.

Physically it is getting more demanding as well, was not prepared for this part and it pisses the hell out of me. I get to ill easily, to faint and way to exhausted. Shopping is not something I tolerate well at all anymore. But there are those that are worse off than I, but I am sure I will goin them soon, the way things are progressing. Even these entries tire me out, takes to much concentration that is getting harder to hold onto.

Well enough pitty potty. You all have a great and wonderful day.

God Bless You & This Country of Ours (we need it now)!


Anonymous said...

Good morning Joe, hope you have a great day too! Thanks for keeping up the hard are a blessing in my life!

tksinclair said...

Hi Joe,

Just checking in to see what you're up to. I'm heading to Boston tomorrow for a week - I'm not too happy about it but I'm visiting a friend. Hopefully when I return I'll try to figure out this chat thing sometime.

Do your best to continue the fight. I'm reading "Measure of the Heart" A Father's Alzheimer's, A Daughter's Return by Mary Ellen Geist. It's insightful, powerful but painful to read. Still I recommend it to those caregivers. My "patient" has passed but I wish I'd read this prior to her illness getting Herculean.

Another book although a novel, not a memoir, is Still Alice by Lisa Genova. It won the 2008
Bronte Prize and I think is a pretty decent portrayal of one woman's Alzheimer's journey. Maybe it will be helpful to some other caregivers. It was recommended by Charley Schneider who wrote "Don't Bury me, It Ain't Over Yet"...which for some reason the title reminds me of you.

So for today that's my message to you Joe...I know you get tired. I know it's hard to fight but remember, at least for today, it ain't over yet! Check in next week. God bless you Joe.

Cyn City said...

I know its getting harder for you Joe. I just wanted to say how much I appreciate your effort and everything you are doing for the cause. We caregivers look up to you a lot! Keep fighting the good fight!

Annie said...

In case you don't realize, the book mentioned above Measure of the Heart, is Woody's story, who was also in the documentary.