Tuesday, May 12, 2009

Thank You All

SmileyCentral.comI hav been deeply moved an honored by the number of people that have wirttin me and sent me emails over the last few days. The words used pay me an honor that I do not deserve. I am but one of many on the journey, I jus am able still to let you know hte rotten side of it here. In watching the HBO special, the real heros were the kids, I cried over their pain and frustration and the absolute resolve they had to love their grandparents and want ing to understand. See you have the tuff part, we just keep forgetting and reach a point that nothing matters as it once did. Someday, they may really know what causes this and may even find a way to stop it, reverse it I do not think so. But wha the hell we are talking about me thinking. I have one brain cell and more than one thought causes a traffic jam and I get totally messed up and confused. It is harder for me to talk these days, words come out kind of liek my typeing. If I get to it today or the nxet couple of days I will be adding some links to other blogs for you to read.

Till next we meet.

God Bless You and This Country of Ours!SmileyCentral.comSmileyCentral.com
joe

29 comments:

johnwaire | photo said...

true...you are 1 of many....but each 1 is important. the kids were heart-breaking. keep blogging joe and keep fighting!!!

foodhoe said...

Thank you so much for writing about your journey, I have so much respect for you and your family in dealing with this so openly! My mother was diagnosed last year with Alzheimers and we are still just coming to grips with what this all means...

rilera said...

Joe, I'm a friend of Annie who with her Mom is in the HBO special. I admire you for allowing your story to be included in the special. I wish the best for you and your family.

I agree with you, the tough part was watching the kids who care for their grandparents. They are indeed heroes, and so are you!

Robyn

Anonymous said...

Take care of your self and be blessed! I got the chance to see the HBO special and I identified the same characteristics in my grandfather. Is like looking back to someone that I loved a lot and remembered like time hasn't passed.

God Bless you.

Cyn City said...

Thank you for sharing your story Joe. I am an only child caring for my father who suffers from AD. I am 24 and he is 76. He is not my grandfather he is my FATHER. I look forward to following your blog. Keep your light shining bright.

Liz said...

Hi, Joe. I didn't see the television show; I just want to thank you for writing and telling us how you feel. Most people don't write enough these days, so I enjoyed reading what sounds like a personal letter, and your spelling is still better than a lot of other peoples' attempts! Thanks again, Joe-I hope you have a good day today, and a good meal, too. Signed, Liz in New Jersey

Jonathan J. Aaronson said...

Dear Joe,
You are a very intelligent man Joe. From the context of the HBO special which I have had the opportunity to watch....And trust me as it was a opportunity for me to see you and your family come to grips with a hard reality only because it reached desperately into my soul as one human being to another. I have no idea if you will remember this comment but what does not kill us makes us stronger. You will be remembered even if you don't remember me and I shall light a resounding pray for you and those that love you because you have such lovely things to live for even if you may not remember them in the future. God Bless you and yours,
Sincerely, Jon Aaronson Tampa, FL

Tasha said...

I'm watching your HBO special now and I am touched by your story. You are a strong person and your family loves you. I don't think you should feel badly about your children suffering, they love you so much and want to be there for you. I know this is hard, but it's okay. We are here with you and I will continue to follow your blog, pray for you, and your family. Can't wait for the next post. God Bless.

Joe(l) the Pastor said...

Joe,
I'm grateful to you for allowing us to see into your life through the show. My hope is that people would have compassion on those affected by dementia/Alzheimer's Disease and that it might lead to research that might slow the progress of the disease, lessen the symptoms, and maybe even lead to a cure.
My thoughts and prayers are with you and your family.

Anonymous said...

dear joe - i just finished watching 2 of the specials. a friend taped them for me. thank u for letting HBO use your kindness and your empathy toward all suffering with this disease. My father-in-law is in the middle stage right now and watching the special gave me not only head knowledge....but heart knowledge. Take care.

Joan
Mobile, Alabama

Mary said...

Joe, You are my hero. I was amazed at your attitude towards AD. My mom has AD and we are all affected as a family. I have been watching the HBO special. I can only hope- that if i am ever diagnosed with this disease that I have the strength and courage to handle it as you do!!

Colleen said...

Thank you for sharing your story. My father in law is 82 and has been diagnosed for about 2 years. God bless you and your family.

Danielle said...

I cried through all of them but the Momentum of Science...the Caregiver one really hit me.
As a daughter of early onset alzheimers....I really appreciate you sharing your journey. Makes me realize how hard it really is for my father.
Feel free to share my blog
www.myspace.com/460578844

Thank you!!
Danielle

AL said...

Hi Joe,
I am American Muslim, Pro-palestinian woman in NH. I wish you the best and hope sincerely that you remain strong.

salaam
cali

Anonymous said...

Thank You for sharing your story Joe.. I knew that AD was difficult on the person who has it but I never knew that it was not only scarey but painful.. I pray that you will continue to " fight" this horrible disease with the courage I know you have inside of you. God Bless you dear man , I shall keep you and your family in my thoughts and prayers..

Clayton Davis said...

I'm watching you right now. You are an awesome man. I pray to be half as cool as you are when I'm your age.

Be well!

Lidna Burke said...

Thank you, Joe, for chronicling your situation. I care for my great Aunt, who is 82 and has been stricken with Alzheimer's for 15 years. God Bless You.

Artist Victoria O'Neill said...

I'm watching you on HBO and it's a real pleasure getting to know you. xox

Tishira Brown said...

God bless you! You are so courageous and I'm so glad I found your blog. You keep up the good fight and know you and your family are being prayed for in my little tiny corner of Texas.

God bless,
Tishira

Sherri said...

I looke forward to getting to know you. You are touching many lives by sharing your journey with us so honestly.
Thankyou!!!

Gargeyi said...

Hi Joe,

I watched you on the HBO special series on AD and cried through the entire show. All the stories screened got me so emotional and I just wanted to let you know you are such a trooper. March on! We love you and we will always pray for your good health.I look forward to reading more of your posts.

God bless,
Gargeyi

Anonymous said...

Hi Joe! You are a remarkable person!. I walk every year the memory walk to raise money for people like you. I like someday to have no more AD!. My name is Kathy Wood. I live in Oakland,Ca.

xstitcher said...

Your blog is inspiring! Thank you for posting your experience for all to see. I am a Masters student in Speech language Pathology. We watched the memory loss tapes for our class and it was a great learning experience. Thank you and continue to stay positive!

Christine said...

Hey Joe! You don't know me but I watched the HBO special and I decided to find your website! I really like all of the pictures, your blog entries, and the webcams. You seem like a very special person. I will be sure to keep checking your blog!

Lizzy said...

Hi Joe. I'm watching the HBO Special right now and am so touched and moved by it, especially when I learned of your blog and then found it!

My mother also has Alzheimer's Disease, although the rest of my family (except for my brother), including my father, is having a very hard time accepting it and dealing with it.

The most tragic part is the pain and loss she is experiencing as she realizes she is slowly sliding into dementia.

Thanks for sharing your story; thanks to HBO for making it happen.

Lizzy Woodfield

Sherry said...

Hi Joe,

I really appreciate your appearance on the HBO special, your candid openness about your dementia, and your sense of humor about it. My Dad also has Alzheimer's. Unfortunately our family is spread out geographically, and I live 3000 miles away, coincidentally just a few miles from you in fact. It is times like these when so far away from our families, that we feel so helpless to assist in the caregiving, the support, or just be present in our family's lives. The passage of time between visits also makes the reality more difficult because we see the changes in more drastic chunks, rather than gradually bit by bit.

Of all the victims in the HBO special, I think my father would relate to you the most. His name is Joe too, and like you, he is very intelligent and struggling intellectually as well as emotionally. He is still "together", but "not", and like you, he is at the point of being aware of the things he does wrong or can't do, "crossing over" and coming back. I think that my Dad would identify with your comments made at the psychologist on the show, if you remember them, and that hit home with me.

I am glad that you are blogging. Most of our family can only "see" my father's decline through my mother's e-mail descriptions, which help us all, including her. I really wanted my father to record his thoughts, feelings, experiences, struggles, and fears in some written manner as you have done, but he not only doesn't have an inclination to do so, but has given up trying to write since even a simple gift card is difficult for him to compose, and he gets frustrated. I would have really liked to have something in writing from him, an interview, or even a video...something to document what he is going through, something to allow him to express his inner struggles, something to help us understand them, something to give us memories of him to hang onto before he is gone. However, it is more difficult for him to face it and talk about it. His "bloopers" are embarrassing for him, and he struggles with desperately trying to preserve his dignity. Your family is very lucky that you are more willing to share yourself and your struggles openly. And I thank you for it too; since my own father can't be as open or write about it, seeing and reading it from others such as yourself really helps me to understand it better, and understand him better, and what he may be experiencing. Thank you so much for giving us that gift.

God bless you and your family. You seem very brave, and your wife, Lynn, is very brave too. It's amazing that you both let the world in on such a touching and emotional personal part of your lives. Thank you so much for sharing it with us. I will continue to follow your blog, and for those of us sharing the journey in some way, I hope that Lynn or another member of your family will share some updates with us after you are unable to.

Many blessings, prayers, and Peace

Sherry said...

Dear Joe, P.S. I forgot to mention that in a few weeks I will be going to see my father for the first time in about two years, and will experience his "new behavior" for the first time, the descriptions of which my mother has been writing to me. Watching the HBO specials has helped me to prepare for this visit and experience. Thank you again so much for being a part of that and helping people like me to better understand the disease, our family victims, as well as prepare ourselves emotionally to meet them. You've been a blessing to us.

Stay strong.
Sherry

Anonymous said...

Dad no matter what you say you will always be my hero. Love you always your daughter

Morgan

dragyonfly said...

Joe, I love your sense of humor...thanks for your bravery and insight. I enjoyed your part in the show, you are one fine human.