Thursday, November 20, 2014



In 1983, three years before his public letter of his own Alzheimer’s diagnosis, President Ronald Reagan proclaimed the month of November to be National Alzheimer’s Disease Awareness month. Two decades and a year later, the Alzheimer’s Association raises the banner on National Alzheimer’s Awareness month with their Honor a Caregiver Today campaign.
Meanwhile, the Caregiver Action Network (CAN) leads us in celebrating National Family Caregiver’s Month with some alarming details. (The three links below are from CAN’s website.] Did you know that…?
Two out of every five adults are family caregivers.
Thirty-nine percent of all adult Americans are caring for a loved one who is sick or disabled – up from thirty percent in 2010.
Alzheimer’s is driving the numbers up. More than 15 million family caregivers are providing care to more than 5 million loved ones with Alzheimer’s disease.
Family caregivers perform medical and nursing tasks. 
Almost half of family caregivers perform complex medical/nursing tasks for their loved ones – such as managing multiple medications, providing wound care, and operating specialized medical equipment.
For information about dementia risks and reducing them and an overview of types of technologies for quality of life, click on:
World Alzheimer Report 2014Infographic – What if you could reduce your risk of dementia?Five simple steps could lead you in a memorable direction.
Summary on the Alzheimer’s Disease International’s website (slightly paraphrased):  Critical examination of the evidence… of modifiable risk factors that can reduce the risk of dementia by as much as 50% including: developmental, psychological and psychosocial, lifestyle and cardiovascular. “Dementia [must] be integrated into both global and national public health programmes alongside other major non communicable diseases (NCDs).
The Landscape of Technology for Older Adults
Technology can increase the quality of life for older adults — an overview.

The World Alzheimer Report 2014 was independently researched and authored by Prof Martin Prince, Prof Emiliano Albanese, Dr MaĆ«lenn Guerchet and Dr Matthew Prina on behalf of the Global Observatory for Ageing and Dementia Care, King’s College London. The work was supported by a grant from Bupa.
Brenda Avadian, MA, Executive Director, founded The Caregiver's Voice in 1998 while caring for her father who lived with Alzheimer's disease. As a prolific author and national spokesperson for family caregivers and professionals, she brings hope and strength to caregivers with knowledge, support, and humor.

God Bless & Keep You & This Country of Ours!

PS: not my usual type of post but Brenda is sort of a neighbour and friend, well you see I so like caregiver's well at least a little.

Sunday, November 16, 2014

Dementia and Driving?

Many of you know that I chose to stop driving almost 6 yrs ago. But I think that this can be a touchy topic between caregiver and care receiver. I stopped because I realised that I had become a danger to others and myself, as well as not being able to make deciions.  I will tell you that at first I had a pitty party for myself, but as time has gone by it is a good thing. I like being driven plaes, I enjoy the driver having to put up with the BS of others not me and I can relax and enjoy the sites as I forget where we are going.

I would say that if you know one such as I and they do not belong behind the wheel (in your judgement), that you get opinions from others before you broach the topic. See we can be very confrontational when you want to take something from us. Never, my opinion, tell the person they are a bad driver and do not belong behind the wheel. A more gentle approach of asking, after you have ridden somewhere with them might be, "So how do you like the traffic theses days?" See you have laid the ground work for discussion, do not push.Maybe the next time you and someone whose opinion the person respectts, may discuss the problems you see that they seem to be having when driving, get them involved. You might suggest a driving anallysis by a professional. The point is is to try and get the person to give up the keys. It is a loss of freedom no matter how you may see it. Yes they can get rides, cab, bus, etc. NOT THE SAME as getting up and going to the car and going where you want. If you cannot persuade the person to stop, talk to their Dr. and see if he or she can convince them. If not have someone other than you contact the DMV and let them handle it and remove yourself from the picture. It is very possible tha the talk with their doctor may just be the trick, remember he/she can report the patient (you loved one) to the state licensing department.

Remember that you are asking or proposing one give up their freedom of self movement, that they probably have been doing for 50+ years or so. How would you feel? Think about it before you act.

God Bless & Keep You & This Country of Ours!

Wednesday, November 12, 2014

Come and Listen

When I first heard about what Olivia Mastry and ACT on Alzheimer's are doing in Minnesota, I had one thought:
They've established dementia-friendly environments in 32 different communities. We will learn from Olivia Mastry more about the power of dementia-friendly communities and use their model to create dementia-friendly environments in all our communities.
Olivia, Executive Lead of ACT on Alzheimer's, will be joining us for our next Alzheimer's Talks on Nov. 18 to answer questions about making your own community dementia-friendly.
ACT on Alzheimer's recognizes there's no one-size-fits-all solution, but they're all borne out of a series of foundational principles you can get started on, whether in your whole community or at your business, place of worship, etc. Olivia will share her recommendations, including lessons learned, and a toolkit with concrete steps in developing a plan.
Join me to learn more about how her work is helping those with dementia and how you can apply ACT's vision in your community.
Please, join us for the conversation by clicking the button below to register for our call on Tuesday, Nov. 18, from 3 – 4 p.m. Eastern time.
Yes, I will attendSorry, I can't make it (but send me a recap afterwards)
The truth is, the only way we'll end Alzheimer's and make lives better for sufferers and caregivers is to do it together. This innovative approach needs to expand across the country, and I can't wait for you to learn more about it.
God Bless & Keep You & This Country of Ours!

Saturday, November 01, 2014

I Return The Favor Geoffrey Beene Fdn.

Some of you may recall The Alzheimer's Project produced by HBO. I was in one of the segments with 6 others who have passed and a number of those in the other segments mentioned have also passed. Geoffrey Beene Foundation helped with funding for the program. This is my opportunity to help them. Please check this out and see if this will help benefit any of you. By the way when I used to dress for work all my dress shirts' were Geoffrey Beene (still have one 20+yrs later)


This form was submitted:  Oct 29 2014 / 13:51:31 by a visitor

userid = jpotocny
FirstLastName = Brittany Brown
Email =
Message = Mrs. Meryl Comer, president of the Geoffrey Beene Foundation Alzheimer’s Initiative and leading Alzheimer’s advocate has launched a Caregiver Health-eBrain Study, the first of its kind to characterize the brain health profile of caregivers.

This is a study, but it is also a political statement that caregivers matter.  This study will help make certain that we are not just given lip-service by the politicians. We are contacting you because you have cultivated a very loyal following. You know your audience and what will resonate with them.
Would you be willing to help us spread the message to caregivers across the nation, by promoting the study to your audience?

JOIN THE STUDY HERE: Watch the video about the study here: j

Feel free to contact me, Brittany Brown, at for more information or with any additional questions.

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God Bless & Keep You & This Country of Ours!

Tuesday, October 28, 2014

A Breakthrough!!!!

Alzheimer’s Prevention RegistryAlzheimer’s Prevention Initiative
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When a story on Alzheimer's research makes it to The New York Times' most-shared list, you know there's been a major breakthrough.
For the first time, researchers have been able to replicate Alzheimer's outside of the brain – they're calling it "Alzheimer's in a Dish." This advancement will allow scientists and doctors to evaluate their experimental treatments and techniques that – until now – would have required human subjects for testing.
This could speed up the research process and help us find a way to stop Alzheimer's faster. We're thrilled to have the head of that groundbreaking team, Dr. Rudolph E. Tanzi of Boston's Massachusetts General Hospital, join us for our next Alzheimer's Talks.
Join our conversation and hear about his plan to quickly evaluate more than 6,000 drugs – a goal that would have been out of the question just a few months ago.
I hope you can join the call.
Read the NY Times article here and click the button below to register for our call on Thursday, October 30, from 4 – 5 p.m. ET.
Experts in the field are calling this "a real game changer" and "a giant step forward for the field." I'm excited to learn how Dr. Tanzi and his team are moving us closer to a cure for Alzheimer's, and I'm looking forward to having you join the conversation.
George Vradenburg
Founding Board Member
P.S. Please note that everyone who registers will be called on Thursday, October 30 around 4 p.m. ET and will be connected automatically to the free teleconference.

Ways you can help:

Spread the WordStart a CampaignCheck Out Study Opportunities Near You
Ask your family and friends to join you in learning about Alzheimer’s prevention research news and opportunities
Share information about the Registry in your workplace or community with our easy-to-use campaign toolkits.
80% of research studies fail to attract enough participants. Ready to help us change that?
Find Alzheimer's prevention studies and trials taking place near you.
Connect with Us:

Saturday, October 11, 2014



'via Blog this'

Read this entire posting.  Cuts to one of my favorite theories, Alzheimer's is a whole body imune system problem.

God Bless,