Tuesday, June 28, 2016

GoodBye Coach Pat Summit!!!!

Alzheimer's after 5 years of living with it has finally set Pat Summit free. She was 64, this is not an old peoples disease folks. Wake up it is comming to a place near you if not you. For many years on this blog I have tried to make sure people know the truth about this disease and the battles that those of us who have Alzheimer's and other forms of dementia fight.

Two to ten years is the life span after diagnosis. Yes some of us live longer with it, we are the unfortunate one's.  Coach Summit is just another to prove the span after diagnosis. That is become it comes to late. Early Onset comes on very early in a person, sometime in the 40s but the medical field believes only what is written shall we say on page 87 (just an example) and it can be no other way.

Alzheimer's, Frontoltempral Dementia, Vascular Dementia, Parkinson's, Dementia, Lewy Bodies with Dementia, ALS, PCA all kill and rob people of who they are PERIOD.  Yet well over 100 years later after it being defined we are NO FARTHER ALONG in being able to help those, like myself, to stop it, slow it down or really treat symptoms.

So Coach Summit you are now free to coach in God's League with clear mind and body. You have been set free, Alzheimer's lost when it took you Life, YOU WON.

God Bless & Keep You & This Country of Ours!

Friday, May 20, 2016

Frontotemporal Dementia takes John Berry Home!

At the age of 52 the founder of The Beastie Boys, rock band, has died from Frontotemporal Dementia.  John was born in September of 1959.  He had over 25 yrs in the music business when the problems of this disease started its' manifestations.  I know how he must have felt because I also suffer from FTD, formerly called Picks.

Goodbye, my friend, you are now home and no more suffering.

God Bless and Keep You and This Country of Ours!

To learn more about this disease:  Frontotemporal Dementia

Wednesday, May 11, 2016

GSHS - Alzheimer's results for me.

Back in January I joined a study to help with Alzheimer's. It was not for a cure or the real cause, it was to see if it could be slowed and give back some of that which a person had lost.

Most of you know I think most of the studies are crap and accomplish nothing. I got involved because this was one that had no preconceptions of the disease. It involved the whole person. Not just the normal tau protein's and tangles. It approached Alzheimer's and Dementia more as an auto immune disease, where the entire person needed to be treated.

It covered the chemicals in the brain, blood, organs, emotions, physical being and the spiritual side of the individual. Well I finished my current involvement on 5/6/2016.  The conclusion is that I have a 25% improvement in my over all being.

Here is what I can tell you.  I have lost about 20 pounds, I am finally after years back to walking daily. For the first time in how long I actually used power tools. On Monday, I helped my daughter do something that I always enjoyed, we sanded down her oak dinning table to get it ready to refinish it. She has to decide on how she wants that process, which I am ready to do.  Six months ago this would not have happened. I have more energy and do think a little clear, but still get confused and have problems getting things from my head to mouth still. Guess I have head and mouth disease. My writing is easier.

The proof is in the pudding as they say. Time will tell how affective this was by how long improvements remain. No claim I am cured, just better than I was and that is a success for the study in my opinion.

Also we got two new kitties and eight month old and one year old. The one year old had left front leg removed and is in a shell, my heart said she had to come hear and we got the younger one to help her in her recovery. So far things are slow but progress not perfection is the way.

Alzheimer's, dementia and Frontal Temporal Dementia and I are still together and will be for the duration I believe, but management without drugs, is helping to improve things, also ten thousand supplements (really not that many) are helping physically. You maybe stuck with me for sometime to come, as long as I can break this wall between me and writing on my blog. It still is bigger than I and wins the battles for me writing.

Until next time be good to yourselves my family.

God Bless and Keep You and This Country of Ours!

Saturday, April 30, 2016

Good Bye My Blaze!

2/02/2002 - 04/29/2016

Good Bye my Blaze. I promised you that when we got you from the pound that
you would be with us until the end.  Your heart problems, kidney problems, your
constant ear infections and messed up joints we took you as you were to help and
give you a life filled with love and caring.  After you spent the better part of 5 years
in the pound on and off, you came into our lives. The last week of you life was not
of quality and pained us as it surely did you.  Not eating, drinking, going to the bathroom,
crawling in bed with us to snuggle and sleep, but hiding and not coming out. So on Friday
we along with your vet decided it was time for you to go and be free of your illnesses and
lack of life quality.  I kissed you and told you I loved you and as we looked each other in
the eyes, I saw your pain and earthly life leave you and I knew I kept my promise. My heart
is filled with pain and a sense of loss, but I know you will always be with us.
Good Bye and Live Well With The Lord, MY FRIEND!

God Bless and Keep You and This Country of Ours!

Saturday, April 09, 2016

Hello To All

I have joined a study on dementia called GSHS sorry do not remember what it stands for. To me it means God Send Help Soon.  My brain is more confused then ever. Have many highways in it that lead to nowhere. Like with most things I have to do I get stopped at the beginning. I have simple reports to fill out for the study - so simple that I am eight behind and need to fill them out. Cannot tell if this is helping, just know I am doing it. I do not understand how it is to work but what the hell, if it works will let you know.

I am pleased that I no longer get all the BS stuff on the cause and cure for Alzheimer's and dementia.  We know they do not know the cause or how to cure or even how to affect real treatment. So I stumble and bumble along. I have started walking with my wife, which is helping my balance to an extent and gives us some quality time though it be short.

Till nex time be good to yourselves.

God Bless & Keep You & This Country of Ours!

Thursday, March 24, 2016

I am still here

It has been sometime since I posted, but I wanted to say HELLO to all of you.

Life is getting more uncomfortable. I now hear different conversations from those I am talking  with then they are having.  My wife has learned to just go with the flow, because I cannot even speak my words correctly. Still can write, just confuses the hell out of me.

Last  6-7 weeks have been rather difficult.  Had my annual checkup in October, got my flu and pneumonia shots. Found out had a hernia, plaque in my carotit arteries, my heart and my neck is a mess as well.       Wnt  on two week vacation in January, visiting some of the kids.  Back a week my right kidney decided to let me know it existed for about a week.  Hernia surgery scheduled for 2/19, you guessed it did not happen.  See I got the flu and it turned into pneumonia, great for the shots. Doc wants me to get the shiggles shot, I think will pass on that. Finally had my operation on the 7th of March. Still healing.

so much for life. See you all later.

God Bless You & This Country of Ours!

Wednesday, January 06, 2016

Why I post about my Alzheimer's.


This form was submitted:  Oct 29 2015 / 10:58:42 by a visitor with this IP Address: 

userid = jpotocny

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Email =

Message = Thank you so much for you participation in the HBO documentary, your blog and your continued work. I have shown this documentary in my psychology class for several years now and it has helped students, and myself, gain a new perspective. Please know that you are in the thoughts of all of us that has followed your testimony.

It is reeiving email aand comments like this that make me feel I am reaching someone.

God Bless & Keep You & This Country of Ours!