Tuesday, June 16, 2015

Of Late

I have heard some noise about a study in Australia, where APPARENTLY they claim to have reversed and "cured" some with Alzheimer's. Since this has been very sparce I wonder about it. I will try and get more info and post what I find out.
I am always suspect of this kind of stuff.

Well off hunting I shall go, with blazing speed, you know slow. That is me today and trying to put a post together is difficult. Wife sys when you think of something write it down. Then put ideas together in a post. Easy for her to say, by the time I go to write it down I forget have of it.. I just cleared my desk of so much junk. That is a problem, I write it down in my own language and then look at it and wonder what the hell.

Life sucks now, I keep taking these trips to the floor and out of bed again.  All part of the process Nice thig I am forgetting a lot out of the past. Hell remembering this morning is a job. I have a new cat, got her from the pound about year ago, see how fast I remember to share things. She is a calico colored persian. We took her because she was 13, no one wanted her with her health problems. So she is with us and healthier and even is finally beginning to learn how to play. She has dementia forgets things quickly, fits in perfectly.

God Bless & Keep You & This Country of Ours!
joe

Saturday, June 13, 2015

Study on Alzheimer's request.

Following is an email I received requesting help.
_____________________________________________________________________________


It is only with the help of people who participate in clinical trials that we can learn more about
Alzheimer's disease and help find effective treatments. There is the satisfaction of knowing that you
are helping others and potentially future generations. As a study participant in a clinical trial,
Alzheimer's patients and their caregivers have access to a healthcare team who may help you
understand Alzheimer's better. Currently three studies are underway to investigate whether a research
drug called idalopirdine, given in addition to the Alzheimer's medicine, donepezil, rivastigmine or
galantamine, improves brain functioning in areas such as memory, thinking and reasoning. It is
important to note that idalopirdine has already been tested in clinical studies with promising results.
To find out more click here: http://alzheimersstudy.com/24.htm



God Bless & Keep You & This Country of Ours!
joe

Thursday, May 21, 2015

National Health Month

May is celebrated as being National Health Month. American Recall Center is one of those online places that you can go to get information on drugs, etc. Personally I feel that one should always check out their drugs no matter what the Dr. says. They are not able to know all of the affects on all the thousands of drugs available. I believe in follow their directions, but I want all the info I can get on what is going in my body. Having Alzheimer's and Frontal Temporal Lobe Dementia, I need to be careful with what I take. Many meds are NG for dementia suffers and can cause many problems.

When first I was diagnosed, I was put on Aricept and then Namenda as well and things seemed to not improve. In fact I had three different Neurologists tell me to trash them that they in their practices had not noticed any benefits. To tell you the facts I felt better once I stopped them. But you need to talk to your doctor, I am not one. I am more on mood stabilizers and anti-siezure meds, which help me to stay as focused as my ½ of brain cell will handle.  I also take supplements, like Mega Vitamin B complex, Vitamin D3, Fish Oil, some natural remedy for the ringing and humming in my ears. I find that all of this seems to help me the most. I did try Coconut Oil, oh well for me it went the way of Aricept and Namenda no help at all, except my skin got a little nicer.

So take a closer look at your meds. learn what you can, do not stop taking them without talking to your doctor. check out American Recall Center. you just may find the info you need.

Till next time stay well. Today I took another trip on the stairs, this Alzheimer's is screwing things up well now, but I still have you to come to.

God Bless & Keep You & This Country of Ours1
joe

Friday, May 15, 2015

Living With Dementia, the Practical, Legal & Financial Considerations

View Infographic »

Tuesday, April 14, 2015

In Memory Of

I have added several persons, some of them friends and some family of friends to my In Memory Of page. Please visit it and pay your respects. If you know anyone on the page who is listed by name only and have a picture of them, I would appreciate it. There is an email form on the bottom of my blog right hand side. Paying proper respect to these people is utmost in my heart. Thank You.

God Bless & Keep You & This Country of Ours!
joe

PS: if there is someone you want to honor that died from any form of dementia, feel free to send their name, birth year, year set free and a picture if possible.

Tuesday, March 31, 2015

Alzheimer's and me!

My old friend Alzheimer's has been hugging me more tightly these days. Guess the old bugger just cannot get enough of me.  I find that conversations are very different from what I now hear. Seems to be getting harder to talk with folks. Once I am on a roll it is ok, but let something interrupt me and who the hell knows where I am then. I am getting testier with those around me, just have to sometimes cannot keep it in. Hidding my wonderfull world of dementia does not work to well anymore, but I guess that is the way it is to be. Have been reading about some of the simillairities between Lewy Bodies and Parkinson's.  Now I understand why Parkinson's is a form of dementia.

Well is it Alzheimer's or Schizophrenia??
My doc thinks I am a bit schizo and has for years.  Maybe it is not Alzheimer's or Schizophrenia, could be Alzhphrenia a new type of dementia. The following is an interesting look into the brain.


Brain's dementia weak spot identified

  • 25 November 2014
  •  
  • From the sectionHealth
Conceptual computer artwork depicting neurology. From left to right: MRI brain scans, 3D dsi white matter brain scan, brain, Alzheimer's brain versus normal brain, MRI brain scan
The brain has a weak spot for Alzheimer's disease and schizophrenia, according to UK scientists who have pinpointed the region using scans.
The brain area involved develops late in adolescence and degenerates early during ageing.
At the moment, it is difficult for doctors to predict which people might develop either condition.
The findings, in the journal PNAS, hint at a potential way to diagnose those at risk earlier, experts say.
Although they caution that "much more research is needed into how to bring these exciting discoveries into the clinic".

Weak spot

The Medical Research Council team who carried out the study did MRI brain scans on 484 healthy volunteers aged between eight and 85 years.
The researchers, led by Dr Gwenaƫlle Douaud of Oxford University, looked at how the brain naturally changes as people age.
The images revealed a common pattern - the parts of the brain that were the last to develop were also the first to show signs of age-related decline.
These brain regions - a network of nerve cells or grey matter - co-ordinate "high order" information coming from the different senses, such as sight and sound.
When the researchers looked at scans of patients with Alzheimer's disease and scans of patients with schizophrenia they found the same brain regions were affected.
The findings fit with what other experts have suspected - that although distinct, Alzheimer's and schizophrenia are linked.
Prof Hugh Perry of the MRC said: "Early doctors called schizophrenia 'premature dementia' but until now we had no clear evidence that the same parts of the brain might be associated with two such different diseases. This large-scale and detailed study provides an important, and previously missing, link between development, ageing and disease processes in the brain.
"It raises important issues about possible genetic and environmental factors that may occur in early life and then have lifelong consequences. The more we can find out about these very difficult disorders, the closer we will come to helping sufferers and their families."
Dr Michael Bloomfield of University College London said: "Schizophrenia can be potentially devastating but at the moment it's very difficult to predict with certainty who is going to have a good prognosis and who might have a poor one.
"This study brings us a step closer to being able to make this prediction, so patients could in the future receive better targeted treatments."
Armed with this new knowledge, it may also be possible to understand how to prevent the brain changes before they occur, he said

More on this story

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God Bless & Keep You & This Country of Ours!
joe

Tuesday, March 17, 2015

Disconnect between brain and fingers.

Hi to All!

I have not posted alot lately regarding me and my journey with Alzheimer's. I am starting to have great difficulty in getting what is in my brain cell to my fingers. Somewhere on it's journey from brain to fingers it gets lost or just plain nothing. I have been fortunate for sometime to be able to communicate here with all of you. But it seems the disease is starting to take what it feels rightfully belongs to it. It is taking a physical toll on me as well. Greedy bastard that it is. I do not write much about going here or there, because I feel that my mission on this blog is to talk about what the disease really does.
Once again I have started getting this crap on how to prevent Alzheimer's or dementia in and of it self. How to cure it. Boils down to the same old bullshit nothing. The new studies and trials that promise so much, suddenly you stop hearing about them, why because they all fail. To many restrictions on reasearch and movement of possible drugs to the market. Smaller brained powered individuals then myfelf  making life decisions for you and me, makes no sense.
I guess 57+ people dieing each day from the Alzheimer's is of no importance to those that try to govern our lives and tell us how they will take care of us. I say stick it up your already clogged lower intestine. We need to force the issue. Not by kissing up to them, but getting on the unemployment lines and start our revolution to first an understanding of the cause, then how to prevent it where we can (if that is possible), find real treatments that work and not just mask symptoms until they stop and leave the person hanging on the cliff. Sounds a bit political, right? Well the time has come for us to go into action. It is clear those claiming to help us, really have not come much more than a foot in well over 100 years.

God Bless & Keep You & This Country of Ours!
joe