Monday, July 18, 2016

Dr. Joseph Sivak

Many of you who have followed my blog for some time, also read I Hate Alzheimer's by Dr. Joseph Sivack. Doc has not posted is some time and we are still close friends. He and his have been traveling and moving to find the right spot to get away from Minnesota winters.  Well, I am happy to tell you that Doc is still alive and thriving and Living in the Land of Oranges. Yes, Florida. Exactly where is up to him to let you know. He still has access to post on my blog.
Many of you know he wrote; When Can I Go Home.  His story of caregiving to his mother who had Alzheimer's.  He now has problems with his eyes, I guess that is because he is a psychiatrist and has seen too many things in people's brains that have taken their toll.
Well back to my world to figure out where I am.

God Bless & Keep You & This Country of Ours!
joe

Tuesday, July 05, 2016

Alzheimer's Claims Mack Rice!

"Sir" or "Gentlemen" Mack Rice as he was known was set free from Alzheimer's a week ago. Many may wonder who was Mack Rice. Well he was a good friend of Wilson Pickett. You say ok and what does that mean. You see Mack wrote a song that Wilson made into a smash, you may remember MUSTANG SALLY, or Respect Yourself that he co-composed.  Mack was 82 when he passed. "Sir" Mack was known for his musical abilities, but more so for the gentle soul he was. The world will miss him.

So long "Sir" Mack!!!!

God Bless & Keep You & This Country of Ours!
joe

Wednesday, June 29, 2016

To My Friend Doreen Platt - Freedom Found You!!!

As I read and see different individuals that live in this World that I do get set free often I am sadden by their leaving.  Especially Today as I learned that my longtime compadre in this battle passed in March of this year.  Doreen suffered several falls a few years back that caused her to stop blogging, you can find her blog on this site.

Alzheimer's takes lives in many ways, infections, cancer and yes falls that create injury. You see we that walk this road do not always know we are sick until. Fall oooooh yes, I know much about losing one's balance and leg abilities. See mine tremble when I stand, when I walk down an incline they run away with me and whoever is with me has to act like an anchor to hold me back. I fall out of bed, now it rests on the floor, slip on rugs walk into walls. I understand the throughs that my friend Doreen went through, now she is free. Walk with the Lord my friend.

God Bless & Keep You & This Country of Ours!
joe

Tuesday, June 28, 2016

GoodBye Coach Pat Summit!!!!

Alzheimer's after 5 years of living with it has finally set Pat Summit free. She was 64, this is not an old peoples disease folks. Wake up it is comming to a place near you if not you. For many years on this blog I have tried to make sure people know the truth about this disease and the battles that those of us who have Alzheimer's and other forms of dementia fight.

Two to ten years is the life span after diagnosis. Yes some of us live longer with it, we are the unfortunate one's.  Coach Summit is just another to prove the span after diagnosis. That is become it comes to late. Early Onset comes on very early in a person, sometime in the 40s but the medical field believes only what is written shall we say on page 87 (just an example) and it can be no other way.

Alzheimer's, Frontoltempral Dementia, Vascular Dementia, Parkinson's, Dementia, Lewy Bodies with Dementia, ALS, PCA all kill and rob people of who they are PERIOD.  Yet well over 100 years later after it being defined we are NO FARTHER ALONG in being able to help those, like myself, to stop it, slow it down or really treat symptoms.

So Coach Summit you are now free to coach in God's League with clear mind and body. You have been set free, Alzheimer's lost when it took you Life, YOU WON.

God Bless & Keep You & This Country of Ours!
joe

Friday, May 20, 2016

Frontotemporal Dementia takes John Berry Home!

At the age of 52 the founder of The Beastie Boys, rock band, has died from Frontotemporal Dementia.  John was born in September of 1959.  He had over 25 yrs in the music business when the problems of this disease started its' manifestations.  I know how he must have felt because I also suffer from FTD, formerly called Picks.

Goodbye, my friend, you are now home and no more suffering.

God Bless and Keep You and This Country of Ours!
joe

To learn more about this disease:  Frontotemporal Dementia


Wednesday, May 11, 2016

GSHS - Alzheimer's results for me.

Back in January I joined a study to help with Alzheimer's. It was not for a cure or the real cause, it was to see if it could be slowed and give back some of that which a person had lost.

Most of you know I think most of the studies are crap and accomplish nothing. I got involved because this was one that had no preconceptions of the disease. It involved the whole person. Not just the normal tau protein's and tangles. It approached Alzheimer's and Dementia more as an auto immune disease, where the entire person needed to be treated.

It covered the chemicals in the brain, blood, organs, emotions, physical being and the spiritual side of the individual. Well I finished my current involvement on 5/6/2016.  The conclusion is that I have a 25% improvement in my over all being.

Here is what I can tell you.  I have lost about 20 pounds, I am finally after years back to walking daily. For the first time in how long I actually used power tools. On Monday, I helped my daughter do something that I always enjoyed, we sanded down her oak dinning table to get it ready to refinish it. She has to decide on how she wants that process, which I am ready to do.  Six months ago this would not have happened. I have more energy and do think a little clear, but still get confused and have problems getting things from my head to mouth still. Guess I have head and mouth disease. My writing is easier.

The proof is in the pudding as they say. Time will tell how affective this was by how long improvements remain. No claim I am cured, just better than I was and that is a success for the study in my opinion.

Also we got two new kitties and eight month old and one year old. The one year old had left front leg removed and is in a shell, my heart said she had to come hear and we got the younger one to help her in her recovery. So far things are slow but progress not perfection is the way.

Alzheimer's, dementia and Frontal Temporal Dementia and I are still together and will be for the duration I believe, but management without drugs, is helping to improve things, also ten thousand supplements (really not that many) are helping physically. You maybe stuck with me for sometime to come, as long as I can break this wall between me and writing on my blog. It still is bigger than I and wins the battles for me writing.

Until next time be good to yourselves my family.

God Bless and Keep You and This Country of Ours!
joe

Saturday, April 30, 2016

Good Bye My Blaze!

BLAZE
2/02/2002 - 04/29/2016

Good Bye my Blaze. I promised you that when we got you from the pound that
you would be with us until the end.  Your heart problems, kidney problems, your
constant ear infections and messed up joints we took you as you were to help and
give you a life filled with love and caring.  After you spent the better part of 5 years
in the pound on and off, you came into our lives. The last week of you life was not
of quality and pained us as it surely did you.  Not eating, drinking, going to the bathroom,
crawling in bed with us to snuggle and sleep, but hiding and not coming out. So on Friday
we along with your vet decided it was time for you to go and be free of your illnesses and
lack of life quality.  I kissed you and told you I loved you and as we looked each other in
the eyes, I saw your pain and earthly life leave you and I knew I kept my promise. My heart
is filled with pain and a sense of loss, but I know you will always be with us.
Good Bye and Live Well With The Lord, MY FRIEND!



God Bless and Keep You and This Country of Ours!
joe