Wednesday, January 11, 2017

Sitting and Thinking?

Well here I sit at my computer, trying to figure out what to post but this disease of mine, Alzheimer's does not want to cooperate with me. I had this wonderful post in my head and well I guess it is lost among my brain cells. This is a very frustrating time for me, see for the first 10 years with this friend of mine I was still able to function brain wise to an extent, now I get confused more, remember less and even forget what I am doing. It is part of the process and not much I can do about it. This is what makes me angry and strike out at people and go into tirades. The loss of my independence to go and do as I want is no longer mine. It is hard to explain to others what it is really like. You have to live here in my world and walk the corridors of my mind to know, but I think it would scare the hell out of you it sure does me.

God Bless & Keep You & This Country of Ours!
joe

Saturday, January 07, 2017

Who is in control, Me or Alzheimer's?

Today I was listening to an Internet Infomercial to cure Alzheimer's with this special diet that has cured over 47,000 people World Wide.  Yes, you to can get this miracle food receipe for the small sum of $37.00, what Bull Shit.

This crap erks me, and the people who fall for it. I know they want to get rid of the disease, but it just does not work that way. I wish it did, but the fact is you get it, Alzheimer's and other dementia's get worse and we die from them, PERIOD! If I could i would remove all this crap from the internet, but unfortunately not possible.  I just keep trying to warn those of us that suffer from Alzheimer's, Dementia, Parkinson's, ALS, PCA, Vascular Dementia, Lewy Bodies, etc., if all this stuff truly worked we all would be cured. I notice the Coconut Oil cure is not heard of anymore.

My friends to cure or halt a disease, you need to know the cause, and we do not know the cause of most dementia's, a few we do and can treat to some extent.  I am not an "EXPERT", but for 12 years I have lived in this world and watched friends die and get worse by the day.  For some reason I am still here, maybe because I am such a PITA (pain in the ass), neither heaven or hell want me.

My days are not all fun and games and wonderfull, most of the time I just sit and try to figure out who, what and where am I and why am I.  I get no answers anymore.   I use to talk to myself, it was the only way I got answers that made sense, now? I can start things, but finishing them is another story, I just stop and forget all about them and even wonder why I am doing them in the first place.

I am becoming more demanding and hostile these days and finding it difficult to control my anger and keeping my mouth shut.  I no longer have the control and probably never did.

God Bless & Keep You & This Country of Ours!
joe

Friday, December 30, 2016

Purple Angel Ambassadors

Today I was greatly honored to be accepted as a Purple Angel Ambassador, to help spread and for spreading the truth about those of us with Dementia to the World.  Thank You, what more can I say. Such a group to be associated with.

God Bless & Keep You & This Country of Ours!
joe

Thursday, December 29, 2016

Dancing With Alzheimer's and Dementia.

Well, here I am sitting again and trying to think of what it is I want to say.  The last couple of months for me have been difficult. Too many people here and staying with us, it drives me crazy. The activity confuses me the conversations escape me and I just sit like a bump on the log. The longer I am still in this world of mine, the harder it is to get around. I do not understand why I still am here after dealing with Alzheimer's, Frontoltemporal Dementia and life in general. I was to be gone by now. It is hard for me to really tell my feelings anymore.  I feel most of the time like I walk into one wall, bounce off of it into another and the cycle continues all day and night.  Now if I even get up late my whole day is off and I forget what I am to do.  Change is becoming near unmanagable and I once loved it and thrived on it, not anylonger.

It seems that these diseases or conditions, whatever the hell you want to call them have their own agenda, it is like dancing with someone and you do not hear the music or know the steps.

It is probably me, but friends ask for help and you do what you can, but whrn you ask they seem to be not really interested. My brain hurts, what there is of it.

A warning do not believe all the illusions put out on the web, causes, cures and the other shit, because that is all it is. The reality of all this is there is no cure, they do not know what causes most of all Dementia and cannot really help us.  If the could you would see people wearing T-shirts saying I Survived Dementia or Alzheimer's, or the such. Fact is we Do NOT.

God Bless & Keep You & This Country of Ours!
joe

Tuesday, December 27, 2016

The following is an email I received from Brenda at The Caregivers Voice, she is a friend and did an article on me, so I am returning the favor, to help spread the word.

Dear Featured VOICE with Dementia,

Fourteen of 16 of you who have been featured as a VOICE of Dementia at TheCaregiversVoice.com are receiving this email.  You have been blind copied to preserve your privacy, although some of you may already have each other’s emails.  ;-)

Wednesday, Dec 28 (the 29th in Australia) The Caregiver’s Voice will post a year-end review of the 2015-2016 VOICES with Dementia column.

Please find below a banner featuring all of your images that will go along with Wednesday’s (Thur in AUS) article.

In 2017, The Caregiver’s Voice will feature more of your friends and colleagues with dementia.

Let’s keep expanding the ripples of dementia awareness.

I need your help in 2 ways (if you’re willing):
  1. Share the link below on your website and via social media to help more people see your unique perspective.
    http://thecaregiversvoice.com/voices-with-dementia/the-caregivers-voice-reflects-on-the-voices-with-dementia/   [Link will work once article goes live]
 
  1. Invite your colleagues / friends who have been diagnosed with dementia to be featured. If they agree, contact me so I may arrange an interview with them as I have with you. (Referrals are the best source.) Share the above link with them so they may learn more.



Brenda Avadian, MA
TheCaregiversVoice.com
Direct Line:
661-944-1130 -- California
Click to SIGN-UP for
The Caregiver's Voice monthly Newsletter – it’s FREE!

God Bless & Keep You & This Country of Ours!
joe

Thursday, December 08, 2016

Seniorlink Caregivers Thank You Contest!


Hi Joe,



As we’re rapidly approaching the middle of December, I wanted to follow up about the “Thank You Caregiver Nation” contest, which is being sponsored by Seniorlink.



As the deadline to nominate a caregiver is at the end of this month, I was hoping that you might help us spread the word and share the contest details on your blog or social media profiles. We would love to reach as many deserving caregivers as possible!



Those wishing to nominate a caregiver can register at www.tycaregivers.com until December 31, 2016. Winners will be rewarded with a credit to PeachDish, a meal delivery company, which will help reduce the stress of planning meals for their families.



The full press release is included below, for your reference. Please let me know if you have any questions!



Best,

Seniorlink, Inc. Announces Call for Entries to "Thank You Caregiver Nation" Contest

Family Caregivers to Receive Free Meals Monthly Throughout 2017



Contest Goal is to Spotlight the Value and Selfless Commitment of Caregivers

  

BOSTON, Nov. 16, 2016 /PRNewswire/ -- Seniorlink, Inc., a leading caregiver solutions company, announced a call for entries for "Thank You Caregiver Nation" - a new contest focused on raising awareness of family caregivers - the many silent heroes who provide care and comfort to a loved one.



The contest will feature twelve winners, with one winner selected for each month of 2017. Each winner will receive a credit to purchase meal options from PeachDish, a nutritious meal kit delivery company. The winners can use their PeachDish credit to order fresh, farm-to-table ingredients to cook meals for their families, and reduce the stress of food shopping and meal planning.



There are an estimated 44 million caregivers in the United States today.i They are the partners, spouses, sons, daughters, friends and loved ones who carry out a daily mission of compassion, hope and assistance. Through their commitment they provide dignity and comfort to a family member or loved one in need of care.



"Seniorlink stands alongside family caregivers as they fulfill their vital role in their loved ones lives," said Thomas P. Riley, CEO of Seniorlink, Inc. "Caregiving can take a physical, financial and emotional toll. This contest is our way of saying thank you – and showing our unwavering commitment to provide the highest quality resources, advocacy and insights for caregivers and their families."



Individuals wishing to nominate a caregiver, or themselves if they are a caregiver, have until midnight on December 31, 2016 to register at www.tycaregivers.com. All that is required is an email address and a short written entry outlining why the nominated caregiver should be recognized. Winners will be randomly selected from a pool of applicants and notified via email.



See www.tycaregivers.com for complete contest terms and conditions.



About Seniorlink, Inc.



For more than 16 years, Seniorlink has pioneered solutions for caregivers across the nation, helping them provide their loved ones with the highest quality care. Seniorlink's unique in-home care solution, Caregiver Homes, dedicates experienced care teams to work alongside caregivers and their families, offering coaching and support at every step. This model, known as Structured Family Caregiving, was the first home and community-based service in the nation to receive the National Committee for Quality Assurance's (NCQA) highest level of Accreditation for Case Management.



To move from supporting thousands to millions of caregivers, Seniorlink has developed Vela, a caregiving platform that brings compassion to technology and assists caregivers as they navigate the complex and sometimes overwhelming world of caregiving. Vela transforms the caregiving experience by connecting care partners directly with caregivers to provide them with the coaching and insights they need along their journey, ultimately improving outcomes and lowering costs for their most complex, vulnerable members. To learn more, go to www.seniorlink.com and follow on Twitter @SeniorlinkInc.



About NCQA



NCQA is a private, non-profit organization dedicated to improving health care quality. NCQA accredits and certifies a wide range of health care organizations. It also recognizes clinicians and practices in key areas of performance. NCQA is committed to providing health care quality information for consumers, purchasers, health care providers and researchers.



About PeachDish



Celebrating the freshest ingredients with Southern-inspired food full of innovative flavor, PeachDish delivers a refrigerated box to your doorstep with ingredients and recipes to cook dinner at home. Customers choose from at least eight different menu options each week, including at least three vegetarian dishes. While purchasing produce at the season's peak to achieve the most flavor and nutrition, the company works directly with farmers and purveyors to source ingredients local to the Southeast, which has an especially long growing season. Boxes are priced depending on number of servings ordered, and shipping location around the U.S. Order as often as you like, with free shipping for regular subscribers.



i AAPR & Public Policy Institute (June 2015). Executive Summary: Caregiving in the U.S. Retrieved from http://www.aarp.org/content/dam/aarp/ppi/2015/caregiving-in-the-united-states-2015-executive-summary-revised.pdf



SOURCE Seniorlink, Inc.



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Tuesday, December 06, 2016

I am asking for your support!!!!!

Congratulations! Living with Alzheimer's is nominated for Healthline’s Annual Best Health Blog Contest! Check it out here: http://www.healthline.com/health/best-health-blogs-contest

Every year we take a look at the top health blogs to honor & recognize them. This year things may look a little different, as we’ve updated the contest and taken strides to make sure everything runs smoothly & everyone has a good time voting for their favorites! 


You can vote once per day until December 12th when the winner will be announced. 

On the site in the search box type   Living With Alzheimer's and then click on the search glass.  Enter your email address where requested the vote and follow any other directions. Remember you can vote once a day until 12/12/2016.  Thanking you for your support.

God Bless and Keep You and This Country of Ours!
joe