Tuesday, November 25, 2014

From Alzheimer's & Dementia Weekly. My President Ronald W. Reagan!!

Ronald Reagan's Alzheimer's Letter: Still Poignant After 20 Years

Ronald Reagan
VIDEO & ARTICLE:

20 years ago, President Ronald Wilson Reagan wrote a profound letter to America about his Alzheimer's diagnosis. It led the way in breaking down the stigma and myth surrounding Alzheimer's. Watch Charlie Rose report on his long, private farewell, ceasing his formal, public appearances. Read the letter.



Nov. 5 1994

My Fellow Americans,

I have recently been told that I am one of the Americans who will be afflicted with Alzheimer's Disease.

Upon learning this news, Nancy & I had to decide whether as private citizens we would keep this a private matter or whether we would make this news known in a public way.

In the past Nancy suffered from breast cancer and I had my cancer surgeries. We found through our open disclosures we were able to raise public awareness. We were happy that as a result many more people underwent testing. They were treated in early stages and able to return to normal, healthy lives.

So now, we feel it is important to share it with you. In opening our hearts, we hope this might promote greater awareness of this condition. Perhaps it will encourage a clearer understanding of the individuals and families who are affected by it.

At the moment I feel just fine. I intend to live the remainder of the years God gives me on this earth doing the things I have always done. I will continue to share life's journey with my beloved Nancy and my family. I plan to enjoy the great outdoors and stay in touch with my friends and supporters.

Unfortunately, as Alzheimer's Disease progresses, the family often bears a heavy burden. I only wish there was some way I could spare Nancy from this painful experience. When the time comes I am confident that with your help she will face it with faith and courage.

In closing let me thank you, the American people for giving me the great honor of allowing me to serve as your President. When the Lord calls me home, whenever that may be I will face it with the greatest love for this country of ours and eternal optimism for its future.

I now begin the journey that will lead me into the sunset of my life. I know that for America there will always be a bright dawn ahead.

Thank you, my friends. May God always bless you.

Sincerely,

Ronald Reagan
God Bless & Keep You & This Country of Ours!!!
joe








Thank you for your interest in Help for Alzheimer's Families resources and family caregiver training opportunities.
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God Bless & Keep You & This Country of Ours!!!
joe

Thursday, November 20, 2014


NOVEMBER IS NATIONAL FAMILY CAREGIVERS & ALZHEIMER'S DISEASE AWARENESS MONTH.

NovemberisNationalFamilyCaregivers&Alzheimer’sDiseaseAwarenessMonth

In 1983, three years before his public letter of his own Alzheimer’s diagnosis, President Ronald Reagan proclaimed the month of November to be National Alzheimer’s Disease Awareness month. Two decades and a year later, the Alzheimer’s Association raises the banner on National Alzheimer’s Awareness month with their Honor a Caregiver Today campaign.
Meanwhile, the Caregiver Action Network (CAN) leads us in celebrating National Family Caregiver’s Month with some alarming details. (The three links below are from CAN’s website.] Did you know that…?
Two out of every five adults are family caregivers.
Thirty-nine percent of all adult Americans are caring for a loved one who is sick or disabled – up from thirty percent in 2010.
Alzheimer’s is driving the numbers up. More than 15 million family caregivers are providing care to more than 5 million loved ones with Alzheimer’s disease.
Family caregivers perform medical and nursing tasks. 
Almost half of family caregivers perform complex medical/nursing tasks for their loved ones – such as managing multiple medications, providing wound care, and operating specialized medical equipment.
For information about dementia risks and reducing them and an overview of types of technologies for quality of life, click on:
World Alzheimer Report 2014Infographic – What if you could reduce your risk of dementia?Five simple steps could lead you in a memorable direction.
Summary on the Alzheimer’s Disease International’s website (slightly paraphrased):  Critical examination of the evidence… of modifiable risk factors that can reduce the risk of dementia by as much as 50% including: developmental, psychological and psychosocial, lifestyle and cardiovascular. “Dementia [must] be integrated into both global and national public health programmes alongside other major non communicable diseases (NCDs).
The Landscape of Technology for Older Adults
Technology can increase the quality of life for older adults — an overview.

The World Alzheimer Report 2014 was independently researched and authored by Prof Martin Prince, Prof Emiliano Albanese, Dr MaĆ«lenn Guerchet and Dr Matthew Prina on behalf of the Global Observatory for Ageing and Dementia Care, King’s College London. The work was supported by a grant from Bupa.
Brenda Avadian, MA, Executive Director, founded The Caregiver's Voice in 1998 while caring for her father who lived with Alzheimer's disease. As a prolific author and national spokesperson for family caregivers and professionals, she brings hope and strength to caregivers with knowledge, support, and humor.

God Bless & Keep You & This Country of Ours!
joe

PS: not my usual type of post but Brenda is sort of a neighbour and friend, well you see I so like caregiver's well at least a little.

Sunday, November 16, 2014

Dementia and Driving?

Many of you know that I chose to stop driving almost 6 yrs ago. But I think that this can be a touchy topic between caregiver and care receiver. I stopped because I realised that I had become a danger to others and myself, as well as not being able to make deciions.  I will tell you that at first I had a pitty party for myself, but as time has gone by it is a good thing. I like being driven plaes, I enjoy the driver having to put up with the BS of others not me and I can relax and enjoy the sites as I forget where we are going.

I would say that if you know one such as I and they do not belong behind the wheel (in your judgement), that you get opinions from others before you broach the topic. See we can be very confrontational when you want to take something from us. Never, my opinion, tell the person they are a bad driver and do not belong behind the wheel. A more gentle approach of asking, after you have ridden somewhere with them might be, "So how do you like the traffic theses days?" See you have laid the ground work for discussion, do not push.Maybe the next time you and someone whose opinion the person respectts, may discuss the problems you see that they seem to be having when driving, get them involved. You might suggest a driving anallysis by a professional. The point is is to try and get the person to give up the keys. It is a loss of freedom no matter how you may see it. Yes they can get rides, cab, bus, etc. NOT THE SAME as getting up and going to the car and going where you want. If you cannot persuade the person to stop, talk to their Dr. and see if he or she can convince them. If not have someone other than you contact the DMV and let them handle it and remove yourself from the picture. It is very possible tha the talk with their doctor may just be the trick, remember he/she can report the patient (you loved one) to the state licensing department.

Remember that you are asking or proposing one give up their freedom of self movement, that they probably have been doing for 50+ years or so. How would you feel? Think about it before you act.

God Bless & Keep You & This Country of Ours!
joe

Wednesday, November 12, 2014

Come and Listen

USAgainstAlzheimers
Joseph,
When I first heard about what Olivia Mastry and ACT on Alzheimer's are doing in Minnesota, I had one thought:
Yes.
They've established dementia-friendly environments in 32 different communities. We will learn from Olivia Mastry more about the power of dementia-friendly communities and use their model to create dementia-friendly environments in all our communities.
Olivia, Executive Lead of ACT on Alzheimer's, will be joining us for our next Alzheimer's Talks on Nov. 18 to answer questions about making your own community dementia-friendly.
ACT on Alzheimer's recognizes there's no one-size-fits-all solution, but they're all borne out of a series of foundational principles you can get started on, whether in your whole community or at your business, place of worship, etc. Olivia will share her recommendations, including lessons learned, and a toolkit with concrete steps in developing a plan.
Join me to learn more about how her work is helping those with dementia and how you can apply ACT's vision in your community.
Please, join us for the conversation by clicking the button below to register for our call on Tuesday, Nov. 18, from 3 – 4 p.m. Eastern time.
Yes, I will attendSorry, I can't make it (but send me a recap afterwards)
The truth is, the only way we'll end Alzheimer's and make lives better for sufferers and caregivers is to do it together. This innovative approach needs to expand across the country, and I can't wait for you to learn more about it.
Sincerely,
George
God Bless & Keep You & This Country of Ours!
joe

Saturday, November 01, 2014

I Return The Favor Geoffrey Beene Fdn.

Some of you may recall The Alzheimer's Project produced by HBO. I was in one of the segments with 6 others who have passed and a number of those in the other segments mentioned have also passed. Geoffrey Beene Foundation helped with funding for the program. This is my opportunity to help them. Please check this out and see if this will help benefit any of you. By the way when I used to dress for work all my dress shirts' were Geoffrey Beene (still have one 20+yrs later)
________________________________________________________________



MESSAGE SENT THROUGH YOUR WEBSITE

This form was submitted:  Oct 29 2014 / 13:51:31 by a visitor

userid = jpotocny
FirstLastName = Brittany Brown
Email = bmichelle08@gmail.com
Message = Mrs. Meryl Comer, president of the Geoffrey Beene Foundation Alzheimer’s Initiative and leading Alzheimer’s advocate has launched a Caregiver Health-eBrain Study, the first of its kind to characterize the brain health profile of caregivers.

This is a study, but it is also a political statement that caregivers matter.  This study will help make certain that we are not just given lip-service by the politicians. We are contacting you because you have cultivated a very loyal following. You know your audience and what will resonate with them.
Would you be willing to help us spread the message to caregivers across the nation, by promoting the study to your audience?

JOIN THE STUDY HERE: www.health-ebrain.org Watch the video about the study here: https://www.youtube.com/watch?v=7dD3ROvJvbo&index=1&list=PLETJvf11XiB-gdknC0IyHe9uKtPQcvrw j

Feel free to contact me, Brittany Brown, at bmichelle08@gmail.com for more information or with any additional questions.


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God Bless & Keep You & This Country of Ours!
joe