AS ONE READER SEE'S IT!

userid = jpotocny
FirstLastName =
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Message = why yu gotta be such a curmudgeon? i got on ur sight for some insight into the disease, my mom has it too. but i dont want to listen to yur ranting and bitterness.. not that i blame yu but i wont be bak. life is hard enuf for us without listening to someone elses negativity. i thank god my mom aint bitter and angry like yu. she so sad at times but othertimes she is happy too and like my own child. sorry for yu

Thank you for using Bravenet Email Form Processing!

(YES I AM CHEATING AGAIN USING SPELL CHECKER ON MY PART even used grammar checker)

As many of you know I invite all comments and emails. I publish them as received. So that you all know, I get many like the above. Of course I hide their identity on emails, but did not have to with this one, them, him, her or it, did not have what it takes to give a first name. This comes from the email block I have on the right side of the blog, so you can email instead of leaving a comment, if you do not want it published.

But I have not edited it, spells like me, because I do not change comments and the like. I have said in the past and still do, bring it on as you feel.

I am sorry that your mom has joined this ever expanding World of Alzheimer’s or Dementia. It is not a fun way to live. Try reading my blog from the beginning and then judge me. You got insight, but could not hear it, your ears and eyes are closed. You think with your heart, which is wonderful, but this disease gives a damn about your heart. It wants and is taking your mom away, like it or not. I am not bitter at the disease or people in general. But I am offended, slighted and angry with those who claim to know how we feel and are making progress. Progress in what? Same info we have now existed over 100 years ago so where is the progress, I keep asking and hear nothing but silence.

I do not enjoy this disease, it will KILL me period. Not only physically, but it is the loss of me that is taking place that just rips at my very fiber.
I say to you who will not return, yes you will, as you see what takes place with you mom. Here you will hear and have heard the truth from one who suffers and is declining. From others you can find the soft gentleness that you seem to want to hear, but not the harsh reality of it all.

If you have the chance to see the HBO documentary ,The Alzheimer’s Project, pay close attention to the time of diagnosis and the immanent decline of the people and how quickly it can come and see what is ahead.
You see Josephine just pasted away a couple of weeks ago. Of course Cousin Cliff passes in the documentary (for real). I do not know about the rest how they are but sure would like to know.

Well I have said what I needed to, I did walk away from the computer before doing this because I wanted to really strike out, but I still have some control over my emotions. Not very often but, once in awhile I manage. So before I go off in another direction Good Bye for today.

God Bless You & This Country of Ours!
Joe

A Request

Many of you may not know, because the media does not care this is NATIONAL ALZHEIMER'S AWARENESS MONTH. Let your local papers know, let us see if they have the balls to say anything.

Again I ask for pictures, birth year and year of passing of loved ones that died from this damnable disease. Two of you have heard. They need to be remembered for they are the faces of Alzheimer's.

(Yes I used spell checker, so I cheated)!

If you like this blog I ask you to click on the Wellsphere voting Icon on the right and vote for it. I know that many on Wellsphere do not necessarily like it, I am not a caregiver or dr. I just suffer from the disease and try to tell how my life is deteriorating and getting worse as we move to my physical death. Yes the 7th leading cause of death. Probably if death certificates showed the real agent that caused death I am sure that it would be higher. Most to feared diagnosis so it is said, is you have Cancer and You Have Alzheimer's. Help me spread the word Please.

Till next time thanks for your thoughts and help.

God Bless You & This Country of Ours!
Joe

When Will They Get IT Right?

The so caled pros that know everyghing, you know the PHDs, the ones with the Paper Hanging Degrees, they still know Jack Squat about this disease. Ant those of you out there withit, that write your wonderful books and taught your abilities to do so, you sure are a big help. Dr. Joe (not me) runs a blog that makes my fires burn, because he knows his mom died from it and still hears all the bs of 20 years ago today, with new hair brained ideas. You want the answers here we are standing ready to show you the way, but you alas are to stupid to realize that just maybe we hold the key and the lock.

Yes I am a tadd upset, because each day we help keep them boobs healthy and 15000 less a year die (which is good), more of us are let to go by the wayside. You see my world is getting worse each day, the one in my head, the one outside of me has been really fucked for just over a year now and going to get worse. Maybe it isn't so bad that I suffer from this Disease, soon I won't give a shit about any of you, because I will not know who the hell you are.

Well it is Turkey Month, this year I give it to the Medical Profession and The Do Nothing Politicians. Uncooked, ungutted, feathers and all, you won't be able to tell the difference any how.

To those I still love and care about.

God Bless You & This Country of Ours.
Joe

To You Who Care For US!

This is my Thank You to all of you that give care for those in this World I live in.

Strange this may sound, but when we are set free from this disease, something really wonderful happens, YOU TO ARE SET FREE. The great burden you shoulder with us on a daily basis, which can be unbearable at times, is lifted from you. You once more are blessed to live your life. Maybe caring for another, or just getting a very well deserved rest for your heart, soul, mind and body.

From thos stil in my world and those that have been set free: THANK YOU11

God Bless You & This Country of Ours!
Joe

Freedom Rings Once More!

Thursday this disease took another from My World. You know it takes owr minds, it takes our emotions, it takes our feelings, it takes our abilities, then it takes our last breathe. But what it does not know iss that it returns it all to us and sets us FREE from its crips. Yes from the grips we snatch Victory. To you my friend Josephine, I can hear you sing your song of Freedom, see you running through the tall grasses under the blue skies. I was blessed, I got to share the big screen with you, but for a moment. Now I know you are free and it brings me hope. Annie God Loves You and so do Lynn and I.

God Bless & Keep You and This Country of Ours!!
joe

What is Important in this World?

Last post has drawn some hard comments, which is great. But the one I am going to post here comes from a friend whose mom is suffering a great deal from this disease.

You know what enrages me? The commercials for the drug that makes your eyelashes grow darker. WTF? There are people dying of AD and other hideous diseases, but we need a f'ing drug that makes eyelashes grow darker. Again, WTF?

2:21 PM

My point exactly.

I was informed that they found the protien believed to be the culprit. AMALOIDs probably speeled wrong. But guess what Dr. A. in 1906 or 1908 made that discovery, boy we are moving fast. By the way this same protien can settle anywhere in the body, and that means any organ and cause failure. It is produced by the body. As I understand it, and we have to remember my brain here, they are formed by an auto imune sysdrome that attackes the white corpusles in the blood and breaks them down into these things and they do not know how to stop it exactly. Got a lesson these on Discovery Health, where a lady was in almost complete kidney shut down from these wonders and I forget what they did to help her, but they did say things could happen again as they did not know how to really stop it. Let's grow those eyelashes, boobs and fix up our stomaches and loves handles guys and gals.

The word AIDS was a stigma but it is ok now, not having it but talking about it. But Alhziemer's get away you with the plaque.

God Bless & Keep You and This Country of Ours!
joe

Anger Sits With Me This Day.

Since HBO has ran and is running the documentery on AD, I have had a slew of emails from this country, Chilie, Brazil, Canada, Australia, Israel, just all over. What has gotten to me is the YOUNG PEOPLE, who have suffered the loss or are suffering a parent and a grandparent and because of this special they want to do something to help. Wow I say, and the adults in this country and around the World have sat on their asses all this time, yes even the tauted medical profession. I hear we have come along way since 1906 or 1908 whenever AD was coined. How far have we come is it in real knowledge, help, knowing the CAUSE, curing or is it just plain ass TIME? I read the studies and that contradict each other, the so called quak cures and how to stop and cure it. But yet I have not read on single word mentioning a persons name that has been cured.....
Oh let us march for a cure, bull shit. Let us first march to find the cause, no cause no cure, that is how it works. Yes these folks will do good in raising funds and maybe some awareness to help in the research on the disease. But since it does not affect your boobs, balls, prostate, colon or lungs, I guess it just does not warrant the NFL or other major playes to do anything. You know I have seen the cancer marches, heart disease, etc. and people where T-Shirts, "I AM A SURVIOR OF CANCER". Watch the walks for AD and find me a picture of just one person that has a shirt that says, 'I AM A SURVIVOR OF ALHZIEMERS OR DEMENTIA"! find it, it will not exist, we all die period. I know Iwill get hate mail and the such, but bring it on, truth stands on my side. Ask the literally 10's of millions around this World that have been affected by it having or knowing one. I do not take the other killers, cancer, heart disease, diabetes, obesity, aids, etc. lightly but boy are there a lot of people (baby boomers) in for the ride of their life, with no real help.

Straight talk from one who suffers and is declining, I hope that I enrage you enough to do something and get rid of socialized medicine it is a failure and by God, do not just take your Drs. word for what is wrong, make hin/her explain why and in detail. It is your LIFE and your BODY that is at stake.

God Bless You & Keep You & This Country of Ours!
Joe