Friday, July 21, 2017

It has been awhile since I last visited here.  It has been a really rough 2+ months.  The move from California to Nevada has been a real pain. Toooo much required of this brain of mine. I am just starting to relax done and feel some of the pressure going away.  My routine is still messed up and causing me problems.  One good thing I have lost almost 20 pounds, I need it.  My temper and ability to cope are getting worst than normal.  It is pobably the stress of the move and all the bull shit that went with it that have me out of line.  I would like to blame it all on the Alzheimer's but I do not think that would be totally honest.

I keep getting emails from people and for some reason they think this is a caregivers' site, well folks far from it.  I have ALZHEIMER'S, yes I do list caregive info, but I am not one at least in the sense you think.  I try to help those caring for us understand what are world is like. What really gets the hair on my neck to stand is reading all the posts on the net by people who think they really know how to deal with us.  People you are as I would say balf fass fackword (figure it out).  You keep repeating the same lame crap.  Get out of the boxes you are in and really learn how to handle us and that is do not try to handle us, we are not trained dogs.  In case you have not noticed we are truly lost and screwed up people.  KEY WORD HERE IS PEOPLE1  qUIT POSTING THE SAME BS OVER AND OVER, find something original, you are supposed to have the brains and the Paper Hanging Degrees, but apparently neither serve you well.

I wonder how many of you have ever really sat down and truly LISTENED to those you care for or if you just march tho the beat of the EXPERTS, which there are none, except those of us that live in this world of Alzheimer's and other forms of Dementia. Try and keep us safe, but do not try and be our keepers. We feel, we hurt, we laugh, we cry, we reach out, we withdraw, yes all the same things you do, but we are akward about it much of the time and very impatient.

I wonder if you would survive a trip through the corridors of my brain for just two hours.  It would be interesting to see how you came out and if your thoughts were different.

Till we meet again.

God Bless & Keep YOu & This Country of Ours!
joe

Thursday, May 18, 2017

Alzheimer's and Toes!

Well what do Alzheimer's and toes have in common?  They are both part of my existence. See my daughter told my wife, I am not sure when, as they went to the gym one day it looks like dad has another toe in the water.  Her way of dealing with my dementia and it's progression.  Now I know why my toes hurt all the time, they are not sure what they are supposed to be doing, YEAH!

I must say that the last 6 or so weeks have been very difficult for me.  My head has hurt, my brain has gone off track and I have been outright scared.  See there was I time that this person loved change, he lived for it, he made it happen.  Now no way leave things be.  Do not move a piece of  furniture or painting, it does not play well in my world.

We are moving out of state.  We are in the process of closing on a home in Nevada and this is a major change and has tooooo many arms to it.  Getting everything in line has been a monumental task for me, since the wife works, I have been doing as much of the leg work as I can.  It has literally drain that ½ of a brain cell that I have left.  My brain is presently on life support which good old friend Alzheimer's takes great delight in.   It takes every ounce of consentration that I can get together to work on things and leaves me totally exhausted and really lousey to be around, especially as any type of company.  I need a robot to handle all of this so I can get back to some assemblance of order or thought process in my life. This physically has drained me as well, I am no longer wired to do this type of work and keep it all straight and not be irritable over things.  Unfortunately or fortunately the only way for me to get away is to leave life.

From all of this I have seen in myself a decline and I guess it was going to take place no matter what, after all that is what Alzheimer's does to you.  It sometimes quickly takes you and then other times it is like a cat playing with the mouse it has caught, takes its' time and slowly breaks you down.

I hear that antibiotics of a certain type now cures Alzheimer's and other forms of dementia, as well as drink this and be cured.  Snake oil peddlers are still out there spreading their bullshit and the sad part is that people soak it up and drown in it.

Enough of me, I hurt need drugs, happy drugs or jelly filled donuts.

God Bless and Keep You and This Country of  Ours!
joe

Thursday, April 06, 2017

Alzheimer's Links

Well here I am again finally, have been going to make this post for a couple of months. I start and the old brain just stops.  Thinks are getting not to be much fun anymore, but that is to be expected.  This is a series of emails I have received in recent months.  I am posting them this way, because it is to much for me to post each of them under resources.  Test the links at your own risk and bookmark those that are of interest to you and most helpfull.
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Hi,


My favorite aunt was recently diagnosed with Alzheimer’s Disease, and it’s sent my family into a whirlwind. I think part of what’s been so tough is that with the abundance of information on the internet, it’s tricky to separate the credible resources from the speculative, and the productive from the grim.
Luckily, research is my specialty! I’ve been gathering some wonderful resources that will help my family stay educated as the condition progresses without keeping them up at night with worry. I think they will also be helpful to many in your audience, especially if you add them here: http://living-with-alzhiemers.blogspot.com/2013/01/hello.html.
Parent’s Guide: Helping Children & Teens Understand Alzheimer’s
Preparing Your Home for a Loved One with Alzheimer’s: A Caregiver’s Guide
Another World: People With Alzheimer’s Share Their Perspectives
Alzheimer’s Aggression: Causes & Management
Guide to Addiction Prevention for Seniors
Dementia Assistance Dogs
Caring for the Alzheimer’s Caregiver
Helping Alzheimer’s Sufferers Cope with the Loss of a Loved One: A Guide for Caregivers
Learning to cope with and manage Alzheimer’s requires the facts, but not the fear!
Best,
Lisa
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Senior Health Resources
Boomer's Roadmap to Aging in Place
Guide to Senior Nutrition
Moving Tips for Seniors
Financial Resources for Seniors
Veterans Benefits for Seniors
Legal Planning for Alzheimer's and Dementia


Hi!

Lately I’ve been devoting my focus to senior health — especially since only 28-34% of Americans aged 65-74 are physically active.

I’ve had the opportunity to speak with some of the elders in my community, and they said although they do want more physical activity, they feel limited in their options. Fortunately, inspiring others to get on their feet is my specialty! I’ve gathered some terrific resources on ways for seniors to lead happier, more active lives, but I need your help distributing them. What do you say — how about here: http://living-with-alzhiemers.blogspot.com/p/in-memory-of.html?










Here’s to happier senior living — because they truly are the golden years!

Thanks for your time,


Marie
________________________________________________________________________________________
Hi,
I saw your website and it was quite helpful.  Thanks!  I'm Linda from Senior Care Helper  We're building a site as a resource for Seniors and their families. 
I thought I'd pass along a few other sites I found useful so maybe your readers might also benefit.
Thank you again.
Best,
Linda Johnson
------------------------------------------------------------------------------------------------------------------------------------\
Message = Hi!

I'm reaching out because I've created a Dementia Caregiving post that you might find useful. It’s about the challenges of taking care of someone with Dementia, how the condition redefines marriage, the importance of self-care, emotions like exhaustion and frustrations are valid emotions and other issues that need immediate discussion and resolution.


Let me know what you think of this idea.

If you find it share-able, would you mind sharing it with your audience?

All the best,

--
Samantha Stein

God Bless & Keep You & This Country of Ours!
joe

Monday, February 20, 2017

Alzheimer's Giveth and Taketh!

I put a comment on a Facebook post and once my ½ brain cell traffic jam cleared up it started to see what I said and what has happened to me since Alzheimer's and I have become such close friends.

After being diagnosed I started this blog over 10 years ago. My wife keeps reminding me why from time to time because I forgot. See I started it for me and me alone. As a kind of journal I guess of what was happening to me.  I never expect to have anything come of it or anyone to read it. Now this will sound like an ego trip and it may well be for the moment.

In this time more than 124,000 people have visited my blog, it is read in over 90 countries, I have 48,000+ steady readers, it is used in over 165 care facilities in the US and other countries. I have a book published, Living With Alzhiemer's (A Conversation If You Will), featured in a documentary by HBO called "The Alzheimer's Project" (I am the only left from it that I can find, that is about 13 other gone since 2008 till 2013), several National Webinars, Alzheimer's Speaks Radio with Lori Bay, blog has won a ton of awards, have been called a hero, strong person, and SOB, hard ass, wonderful, etc.  Who would have ever thought a person like me would garner such attention, certianly not this person. I sit in awe everyday of it. These are some of the gifts I have been given because of this disease, Alzheimer's, Frontoltemporal Dementia and just no brain cells left.

I challenge all the studies and claims and you know it seems they all fall apart at the challenge. There is no cure, no treatments (that really work), and the hope seems at least to me very small that the medical field will ever get their collective heads out of their asses and figure this out. Crap they have had well over 100+ years.  But what the hell, we are still referred to as "THOSE PEOPLE". See I do my very best to tell it how it is, not how I would like it to be or how you want to hear it.

It has taken my freedom from me, I cannot go anywhere without being taken. Go on a walk alone no way I may not return. Once I took my granddaughter to the park by the house, she was about 5 I think. I was lost, she took me by the hand and said it is ok grandpa I know the way home and so she did. Each day it takes another slice of me, this fricken damndable disease.  I have even look straight at my wife while talking and asked her who the hell she was, because I forgot. I can be sitting watching TV or talking and I am gone, not asleep although that happens, just gone my body is there and Joe has disappeared. I no longer can use power tools and build things, I have forgotten more than 3/4 of the computer knowledge I had. I can see what I want to say or do, but cannot get it out of the pathways of my brain. It screams and yells at me to let it out, but I have no control over it. There are times like this that it flows from me, but not very often anymore.

Well my soap opera box is weakening so I will say till next time:

God Bless & Keep You & This Country of Ours!
joe