Saturday, April 09, 2016

Hello To All

I have joined a study on dementia called GSHS sorry do not remember what it stands for. To me it means God Send Help Soon.  My brain is more confused then ever. Have many highways in it that lead to nowhere. Like with most things I have to do I get stopped at the beginning. I have simple reports to fill out for the study - so simple that I am eight behind and need to fill them out. Cannot tell if this is helping, just know I am doing it. I do not understand how it is to work but what the hell, if it works will let you know.

I am pleased that I no longer get all the BS stuff on the cause and cure for Alzheimer's and dementia.  We know they do not know the cause or how to cure or even how to affect real treatment. So I stumble and bumble along. I have started walking with my wife, which is helping my balance to an extent and gives us some quality time though it be short.

Till nex time be good to yourselves.

God Bless & Keep You & This Country of Ours!
joe

Thursday, March 24, 2016

I am still here

It has been sometime since I posted, but I wanted to say HELLO to all of you.

Life is getting more uncomfortable. I now hear different conversations from those I am talking  with then they are having.  My wife has learned to just go with the flow, because I cannot even speak my words correctly. Still can write, just confuses the hell out of me.

Last  6-7 weeks have been rather difficult.  Had my annual checkup in October, got my flu and pneumonia shots. Found out had a hernia, plaque in my carotit arteries, my heart and my neck is a mess as well.       Wnt  on two week vacation in January, visiting some of the kids.  Back a week my right kidney decided to let me know it existed for about a week.  Hernia surgery scheduled for 2/19, you guessed it did not happen.  See I got the flu and it turned into pneumonia, great for the shots. Doc wants me to get the shiggles shot, I think will pass on that. Finally had my operation on the 7th of March. Still healing.

so much for life. See you all later.

God Bless You & This Country of Ours!
joe

Wednesday, January 06, 2016

Why I post about my Alzheimer's.


MESSAGE SENT THROUGH YOUR WEBSITE



This form was submitted:  Oct 29 2015 / 10:58:42 by a visitor with this IP Address: 

userid = jpotocny

FirstLastName =

Email =

Message = Thank you so much for you participation in the HBO documentary, your blog and your continued work. I have shown this documentary in my psychology class for several years now and it has helped students, and myself, gain a new perspective. Please know that you are in the thoughts of all of us that has followed your testimony.

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It is reeiving email aand comments like this that make me feel I am reaching someone.

God Bless & Keep You & This Country of Ours!
joe


Wednesday, September 09, 2015

Fragile Storm

I know I said the last post was my last, but I just received this email today. I wanted to give you the opportunity to see this films trailer. It has taken us almost 3 yrs to bring it to truition, yes I am a backer and funder of this film.


Hello Fragile Storm Backers!

WORLD PREMIERE!!  NEW WEB SITE!!  NEW MOVIE TRAILER!!  NEW MOVIE POSTER!!   BE THE FIRST TO SEE IT ALL!

We are thrilled to announce that our world premiere will be at the Hollywood Film Festival on Thursday Sept 24th at 6:45p!   http://hollywoodfilmfestival.com/films/fragile-storm/

At the amazing Hollywood Arclight we'll be screening five separate times throughout the entire festival!  Yes, they are rolling out the red carpet for us and Lance Henriksen will be in attendance!!

We'll be sharing ticket information soon, as we're trying to get a bulk discount.   Some of you who donated at the premiere level will be getting complimentary tickets.  We'll be emailing you directly about that soon.

I'm also thrilled to announce the release of the Official Fragile Storm Trailer that you can watch and share at
www.FragileStorm.com, our Facebook page or directly from vimeo at https://vimeo.com/138027922.   Be sure to share the trailer on your social media and mention that you are a backer!

All of this, as well as the cast, crew and film credits can now be found at our web site www.FragileStorm.com, so be sure to check the "Meet Our Backers" tab on the web site to make sure your name and position are correct.  This is absolutely the last time to get any corrections made to the film credits.

God Bless,
Joe

Sunday, September 06, 2015

Me and Alzheimer's Saying Good Bye!

 It has been nine years this motnh that I have been posting on this blog. I hope that I have kept to my purpose to expose both the truth and th lies regarding this disease. I have looked at most of this years posts and they have been mostly study or info and not on my journey with Alzheimer's. You see I no longer know what to say, this sucks. THERE IS NO CURE, they do not even no the cause, there are no diets that really change this INSPITE of what you hear or read on the internet. If any of this did exist, you who have your ears ringing from the news of it.

I have grown tired and wiery and quite frankly tiered of all the bs out there and the goody two shoes, doing nothing really. All the people in the know say we are making great strides, I would like to see all that greatness. My life has been coming more confusing as we go along. I have more and more trouble and I keep falling asleep at this thing when I try to post or do other things. I speak a new language now good think my wife knows it or I would be totally lost.

So I think the time to say so long has come and thank you for your friendships, kindness, good wishes and putting up with me. Till we meet

God Bless & Keep You and This Country of Ours!
joe

Tuesday, July 28, 2015

Dr. Richard Taylor Goodbye My Friend.

It saddens me to tell you that my friend and cohort in this fight against Alzheimer's passed away on July 25, 2015.  It was not his Alzheimer's that took him but his additioal battle with throat cancer. I have known Richard since about 2005 when we met through our blogs on Alzheimer's. I feel the grief the family must fill, but I rejoice that my friend is finally free and able to be happy. I am a better person for having known him, although we did have sharp disagreements. Good Bye my friend and now you walk with the Lord, yes I am jealous.

Every year Alzheimer's claims the lives of over 500,000 people, about 1 every 67 seconds. Where is the real out cry against this. Not the establishment or those groups that placate them and feel a gentle approach is needed.  I suffer from the disease and say screw that idea, civial disobidence is the way, with loud marches, letter and fax campaigns and voting those out of office that do not want to fund research fully. How did AIDS get the money, what about the 60 mile marches for breast cancer. How did civil rights get attention and work to help make it a real part of our lives?

Richard was diagnosed in 2001 with this wonderful disease, Alzheimer's. He outlived the normal life span of 2 - 10 years, by 4 years. Maybe if he had not had Alzheimer's weakening his body and taking it's pound of flesh, he may have not gotten cancer. Food for thought.

God Bless & Keep You & This Country of Ours!
joe

Saturday, July 25, 2015

Alzheimer's or Dementia?



EXPERT

Alzheimer’s or Dementia: What’s the Difference?

Sunday, July 12, 2015

Illustration of the brain
Alzheimer’s disease is the most common type of Major Neurocognitive Disorder, formerly known as dementia. Learn more about the difference between Major Neurocognitive Disorder, Mild Neurocognitive Disorder, and the pre-symptomatic phase of Alzheimer’s disease.
Bill looked at his father, Walter, who for the third time was telling us about the great times he had in the army after he enlisted around 1950. Walter became a successful engineer who worked productively into his mid-70s. When he experienced increasing forgetfulness, he recognized the need to wind down his career. He moved into the friendly and stimulating environment of a local assisted living facility’s memory unit. His life there was a good one. His close family relationships continued. He enjoyed detailed memories of the past, but recent events no longer made a lasting impression on his mind.  Bill asked me, “What is my father’s diagnosis? Is he demented? Does he have Alzheimer’s disease? And what’s the difference between dementia and Alzheimer’s disease?”

Everything Changed in 2013

This question often comes up in a clinical interview, and up until recently the answer would have been that dementia is diagnosed when a person has a severe memory problem in addition to difficulty with language or another cognitive function, and that Alzheimer’s disease is the most common type of dementia. In 2013, though, everything changed.
The new psychiatric Diagnostic and Statistical Manual (DSM 5) renamed “dementia” as “Major Neurocognitive Disorder” and added a new, less severe category of cognitive difficulty called Mild Neurocognitive Disorder.
Major Neurocognitive Disorder is diagnosed when disturbance of a single cognitive ability is severe enough to interfere with independence and the disturbance is not caused by drug use, delirium, or various other medical or psychiatric conditions. The cognitive abilities that are tested for this diagnosis are:
  1. complex attention;
  2. language;
  3. executive function (which are skills that enable people to plan, organize, remember things, prioritize, or pay attention to tasks,  for example);
  4. visuospatial function (the visual  perception  of  spatial  relationships  among  objects;,
  5. memory; and
  6. social cognition.

Where Does Alzheimer's Fit In?

Alzheimer’s disease is the most common type of Major Neurocognitive Disorder, but it is only one of many possible causes. Vascular cognitive impairment, dementia with Lewy bodies, frontotemporal dementia, Parkinson’s disease, Huntington’s disease, HIV, traumatic brain injury, and other conditions each can cause severe cognitive changes.

Mild Impairment

Mild Neurocognitive Disorder (formerly called mild cognitive impairment or MCI), by contrast, is diagnosed when a less severe cognitive problem exists, manifested as difficulty with one of the six listed mental functions (listed above) that is significant enough to require compensatory activities, such as writing everything down in order to remember. Mild Neurocognitive Disorder, by definition, is not bad enough to rob a person of basic independence. The DSM 5 says that one possible cause of Mild Neurocognitive Disorder is Alzheimer’s disease, but it is only one of many medical or psychiatric conditions that can cause this clinical condition. In other words, Alzheimer’s disease can be present without Major Neurocognitive Disorder or dementia, and dementia can be present without Alzheimer’s disease.

Alzheimer’s Begins Years before Symptoms are Apparent

The DSM 5’s new definitions followed a series of very influential articles published by Alzheimer’s disease researchers in 2011. These experts encouraged us to recognize Alzheimer’s disease as a disease pathology rather than as a clinical syndrome. In other words,  to understand that the effects of Alzheimer’s disease on the brain begin many years before memory loss or behavioral changes become apparent. The 2011 expert statement defined three stages of Alzheimer’s disease. The dementia (Major Neurocognitive Disorder) phase is only the final stage. Earlier symptoms are recognizable in a symptomatic, pre-dementia phase (Mild Neurocognitive Disorder). With amyloid PET scanning or various other biomarker measurements, doctors can also determine the presence of Alzheimer’s disease pathology in the brains of people with no apparent clinical symptoms. This is the asymptomatic, or pre-symptomatic phase of Alzheimer’s disease.
The illustration below shows that Alzheimer’s disease can manifest itself with clinical symptoms ranging from none to major.  Alzheimer's, however, is not the only cause of Major Neurocognitive or Mild Neurocognitive disorders.
The Relationship of Alzheimer’s Disease to Neurocognitive Disorders

A Diagnosis and an Important Question

When Walter was examined further in our clinic, we decided that his memory troubles were indeed the result of Alzheimer’s disease. He had Major Neurocognitive Disorder and we were unable to identify any other medical or psychiatric disorder that could be responsible for his condition. An amyloid PET scan of Walter’s brain would likely have showed accumulation of beta amyloid, the disease-associated protein found in the brains of people with Alzheimer’s. Bill asked, “What about me? Will I get Alzheimer’s disease?”
What we know now from biomarker research allows us to answer Bill’s question in a way that would not have been possible for past generations. We can tell Bill that he definitely does not have dementia, and that if he has Alzheimer’s disease it is in the pre-symptomatic stage. Occurrence of the disease in his father puts Bill at a small increased risk, so we’ll watch him in the future. For the present, we’ll encourage him to adopt a brain-healthy lifestyle that includes management of chronic medical diseases, stress reduction, healthy eating habits, adequate sleep, plenty of physical activity, engagement with others, and cognitive stimulation. Of course, this brain healthy lifestyle is a good prescription for all of us!



The information provided here is a public service of the BrightFocus Foundation and should not in any way substitute for personalized advice of a qualified healthcare professional; it is not intended to constitute medical advice. Please consult your physician for personalized medical advice. BrightFocus Foundation does not endorse any medical product or therapy. All medications and supplements should only be taken under medical supervision. Also, although we make every effort to keep the medical information on our website updated, we cannot guarantee that the posted information reflects the most up-to-date research.

These articles do not imply an endorsement of BrightFocus by the author or their institution, nor do they imply an endorsement of the institution or author by BrightFocus. 

God Bless & Keep You & This Country of Ours!
joe